Molehill Into Mountain.
Last Friday morning I checked in at the hospital, took a seat in the radiology waiting room, and paged nervously through an issue of People while listening to the man across from me discuss his leg injury. He was explaining to a trapped-looking fellow patient that there had been “groin involvement.”
“My testicles,” he says loudly, “You know, and that tube? The Vazzy something?”
His fellow patient nods, and looks around wildly.
The woman next to me is on the courtesy phone trying to arrange for a ride home after her appointment. I hear her responding to possibly the lamest excuses ever.
“It’s not that hot out,” she says, and then “Can’t you tape it?” She moves the phone away from her ear and stares at it. “He hung up!”
She starts dialing again, and glances over at me.
“I might use some words you don’t want to hear.”
“Go right ahead,” I tell her. But this time, nobody answers the phone.
“Exes, huh?” she sighs at me.
“I know,” I say sagely, “They’re nothing but trouble.”
She sighs again. “I wish I had some Valium. I get panic attacks at the doctor, and they’re putting some goddamn needle in my spine today.”
“I have Ativan,” I offer helpfully.
“You’re shitting me.”
I am not shitting her, and am reminded of my high school days as I slip a pill into her palm. She wanders off in search of water and I return to my article about the tendons in Nicole Richie’s neck.
I am feeling pretty good about myself (Alexa! Helper of Panicked Women!) when the nurse calls me up to the desk.
Dr. Doctor has been delayed. My procedure has been pushed back by an entire hour.
By the time I am finally brought, gowned and pantyless, to the procedure room, I have worked myself into a state. I make increasingly lame and hysterical jokes to the nurse as she helps me onto the table and drapes my bottom half. Dr. Doctor comes in, reassures me jauntily that this will be a breeze, and inserts a speculum, twisting it a bit as it goes in, which is just as pleasant as it sounds. She swabs the hell out of my cervix with frothy pink soap, and then the nurse hands her a catheter and something else I cannot identify. I can’t see what is going on, but I can feel various implements being jostled about my nether regions.
The radiologist takes his position, and Dr. Doctor tells me to relax as she begins to inject the dye. At first I feel a mild cramping, but before I can even form the thought that really, this isn’t so bad, I am filled with pain that I am still, a week later, at a loss to describe. It feels unbearable, and I am paralyzed, able to do nothing but say “Oh, oh, oh!”
I hear Dr. Doctor say “left side” and “distal” and then the radiologist says “No, there it goes.”
And then it is over. I am shaking, and panting slightly, and realize that I completely forgot to look at the screen.
Next there is apparently some bleeding, and Dr. Doctor explains that she will have to use pressure to get it under control. She smooshes some gauze firmly against my cervix and I stare at the ceiling.
The nurse helps me sit up and Dr. Doctor shows me the films.
“Your uterus is perfect,” she says, “It’s shaped like a cocktail glass.”
It is shaped like a cocktail glass, which seems appropriate. It is adorable, my uterus, and much more petite than I had imagined—about the size of a deck of cards. My right tube is lovely as well, resembling one of those ribbons used in Rhythmic Gymnastics.
My left tube—like my left ovary—is large and homely. The dye did not spill at first, and Dr. Doctor was concerned about the wide, sausagey shape of the tube, but apparently you can see “sub-mucousal folds,” and since the dye did spill eventually, she assures me there’s nothing to worry about.
Now, you all know how much confidence I have in doctors who tell me there is nothing to worry about, but I remained uncharacteristically silent. I tried to think of questions to ask, but I was dazed and shaky. I just wanted to go home.
As I changed, Dr. Doctor chatted with the nurse, who is getting married next month.
“Alexa has a wedding coming up, too,” she says as I emerge from the changing room. “They started trying to get pregnant before they got married.” Dr. Doctor mocks making a tsk tsk gesture at me with her fingers. “Maybe that’s why it’s not working!” she says, laughing.
It was only a joke, of course. But there is a time and a place, if you know what I mean, and that wasn’t it. And as much as I would like to believe that showers of eggs will pop from my formerly reticent ovaries as the Actually and I are pronounced man and wife, it seems unlikely.
I promised to call if I had further bleeding and then I drove home, where I started to cry.
I don’t know why. The worst pain was over, and the cramping wouldn’t come back until later that evening. My tubes weren’t blocked. My uterus was shaped cunningly like a cocktail glass.
There’s just no pleasing some people.
The Actually had arranged a little bedroom nest for me to recover in while he was at work—laptop, West Wing DVD, sweet note on the pillow. But not even the peripatetic charm of Josh Lyman could lift my post-procedure funk. I cried for hours, and then I drank a tumbler of wine and went to sleep.
I do a lot of research. I ask many questions of my doctors. I do everything in my power to exert some measure of influence over my reproductive life.
During Friday’s procedure I was filled with instruments and paralyzed by pain. I have never felt so vividly out of control. Afterwards I was unable to think clearly–confused by the results and what they might mean, but unable to ask for more information. I felt tiny and powerless and sad. While I waited for the films to develop, I realized for the first time that it is possible that I will never get and stay pregnant, that contrary to the way I have been behaving, no amount of research and hard work can ensure that things will ultimately work in my favor.
I feel silly writing this, which is why it has taken me a week to do so. I sound overdramatic and whiny–or worse, stupid: What, you say infertility involves a shattering loss of control?
You’re shitting me.
Contrarily, it seems the realization that I may never have a biological child is one more suited to someone who has at least undergone an IUI, for heaven’s sake. But there you are. Or rather here I am—getting ahead of myself, as usual.
I still don’t know what to think about my left tube. The online pictures I found that it resembled were of hydrosalpinxes (hydrosalpinges?). But it is my understanding that my tube cannot be a hydro, as it was either open, or opened under the pressure of the dye. So it remains a mystery.
The other films I found that showed a resemblance to my own were those of a woman with genital tuberculosis, but I think we can rule that out, much as the idea of spending a few months reclining in a wicker wheelchair with a blanket over my lap appeals to me.
To sum up:
HSG=Painful
Right tube=Normal
Left tube=Wonky, unattractive
Uterus=Cocktail glass
Now, let’s talk about something else.


28 Comments
OK, I don’t care if she was joking, that was so the wrong thing to say that - well, I don’t know what, but it’s just wrong.
I am so sorry that in addition to physical pain, the whole thing was opened a psychic wound.
Anyway, you should have some good karma heading your way over the Ativan-sharing. I hope it comes soon.
Ugh. I’ve read on other blogs that even though the doctors say the HSG isn’t that big a deal, IF patients find it to be pretty dang traumatic. It’s often the first “major” test, beyond blood work and maybe an ultrasound and the guy’s spunk-in-a-cup efforts. It’s painful and embarrassing and pretty much sucks.
Mine wasn’t as painful as yours, but maybe I just have no feeling in my effed-up left tube. (I have lurve-ly pictures on my blog of my hydrosalpinx, if you’re still in picture-comparison mode.)
I’m glad it’s over, at least.
Oh, and I would have had to smart off to the doctor who criticized your timing. Screw her. Joking or not, I just don’t think you should kid around about why people are suffering with infertility. I’ve beat myself up enough for my hydro, blaming it on past promiscuity. IF + Guilt = Utter Misery. Heck, if y’all had waited, you’d be that much further behind in getting everything diagnosed and (hopefully) worked out. That doctor was way out of line.
My significant other and I also took the road not usually traveled to marriage. Dated for 4 years, lived together 5, had a baby then got hitched after a year and a half as I wanted to drink at the wedding.
In my book you seem to be doing things so intelligently. Perhaps the Doc is jealous?
You can get TB in the genitals? Awesome. That’s the sort of information that would have kept me awake in my medical microbiology class. I wonder how that even happens, too much coughing in near proximity to other people’s crotches?
Twisty speculum? TWISTY SPECULUM? Noooo!
I’ll be thinking of you. Hugh says you can borrow him if it will help. If you like I could sweep up all of his shedded fur and mail it to you; there’s so much of it that I’m pretty sure you could make another soft, cuddly bunny out of it. A special, nonmoving bunny. (Warning: People will look at you funny.)
Ooof.
I don’t know if this helps much, but the HSG was really the worst of the infertility mamba. I should know, because I had TWO. (The second doctor wasn’t “satisfied” with the one the first doctor did.) (The third and final doctor rolled her eyes at all this and said she had no interest in doing another, and I wanted to kiss her.)
For the second one, I was at least prepared: I took so many substances beforehand that I have no memory of the rest of the day, including my inlaws coming to visit and my sister calling, though I apparently seemed no more out of it than usual. Which is a bit scary, come to think of it.
You’re allowed to curl up and lick your wounds. But I suppose only a cat would have the agility to lick there.
I wouldn’t stress over the ugly tube. Parts are parts.
Oh, honey. I’m so sorry. If it helps, it makes perfect sense that you would cry for four hours even if the test results were good. And I think you’ve hit the nail on the head about why.
That’s it. I’m breaking up with Dr. Doctor. She used to be my favorite internet RE… but no longer.
I’m sorry you had such a crap experience. And that was very uncool of the doc, I have to say. You’d think people would have a tiny bit more sensitivity.
And the first time it occurs to you that things might not work out–despite all your effort and research and good intentions–is utterly shattering. It just doesn’t make sense. And it isn’t fair. And saying it doesn’t sound overdramatic and whiny. So don’t be so hard on yourself.
But hey, a cocktail glass shaped uterus is pretty glamorous, and totally makes up for the dorky tube. Mine looks like a martian with smoke coming out his ears. Not sexy at all.
I. am. appalled.
Did they not advice you to take, at the minimum, a tylenol? And I was told that I would need to have someone drive me home so I was fortunate to have Mr. DD there to hold my hand.
Hopefully when they said your uterus was shaped like a cocktail glass, they weren’t talking about the novelty margarita glasses that are shaped liked cacti.
I’m sorry that the experience was painful, mentally and physically.
Dear Alexa, I’m so sorry to hear that your HSG was so painful. And I can so imagine breaking down afterwards — there is only so much pain stacked up on so much waiting stacked up on so much frustration stacked up on so much dealing with stupid comments that a person can take. Every once in a while all that crap has to come out, somehow.
Oh, Alexa. I’m so sorry. I’m not sure what else to say except that I’ve been thinking of you this past week and was hoping this procedure wasn’t as traumatic as it turned out to be. I hope you feel better soon, both physically and emotionally.
Wow. What an overall sucky experience, except for those results.
Hang in there, sweetie.
That whole thing was deplorable. I was told to take 4 Tylenol an hour before my first HSG (I’ve had 2 so far). I don’t think it touched the pain–mine was more painful than anything I’ve ever experienced (which includes abdominal surgery, several broken bones, and natural childbirth) and I nearly passed out afterwards because I was so light-headed with pain–but at least they recognized that it can be painful.
If my doctor ever made a comment like that, I think I’d lodge a complaint with the state medical board about not treating patients with respect. At the very least, I’d write a very strongly-worded letter directly to her when I told her that I was changing practices. She is not in the position of making judgments about your choices, even if she is just joking. If an unwed woman came to her having a miscarriage, would she say, “Well, it’s probably because you weren’t married to the baby’s father?” Absolutely inexcusable.
I hope that the left tube isn’t a problem at all.
I had my HSG 18 months ago +/- and it was the absolute worst experience of any IF stuff. I warned my friend who went in a while after I did and she agreed. Thank goodness I had H in the waiting room for me. I came out hysterically crying. I couldn’t control myself for a long while after. My dr had inappropriate comments after as well. The whole thing sucks, but you got good news and thankfully this part is all over.
I feel for you. I had a bout with cancer over the past year, and every single time I would deal with Drs or machines or surgeries, I would go home and just cry my eyes out.
Medical issues take all of your spirit to overcome. Drs are frighteningly distant and often inappropriate with the spirit end of treatment. Hang in there, it will all work out for the best in the end, and I have hope I’m sending your way.
At my HSG I had to have the syringe refilled three times before my left tube finally opened and the dye spilled. This must have been very hard work for the radiologist, taxing, because she said,”well you only need one, so were done here.” Like she didn’t have the strength to go on. I remember thinking well I would really like two. Two open tubes would be good. Aren’t I paying you a lot of money to open my damn tubes lady!
I don’t understand why hsgs are such a non-event for some of us, and like total torture for others. I fell into the first camp. One thing I would say is that the doc who did it didn’t give me the real scoop - it wasn’t til I saw the RE that he pointed out the misshappenness of my uterus due to a fibroid. So I assume you’ll be getting a consultation to discuss that left tube when you get the chance?
Anyway, I’m not surprised about the crying. It’s an experience of being violated over and over again. I’m amazed we don’t all burst into tears any time someone inserts a speculum. Which,for most of us, is too bloody often.
After my HSG test, the doctor told me my cervix was — get this — like a “corkscrew” and was difficult to navigate during the extremely painful procedure (they’d given me the same it-won’t-really-hurt-at-all advice). So I guess I’d rather have a cocktail glass shaped uterus than a corkscrew shaped cervix!
And on the lack of control issue. . . I am so with you on that. Before battling infertility, I vainly thought that I could plan out my life, like some script right out of some self help book. I’d get a job, get married, have kids at a certain age, etc. Then when I found out it wasn’t that simple, my entire life’s perspective was obliterated. I didn’t like ceding “control” of my life over to this unknown, murky “infertility” diagnosis.
I know how much it sucks to feel like you have no control over any of this. I’m so sorry the HSG was traumatic and the doctor kind of an ass with his tsking.
You have no reason to apologize for feeling this way Alexa. Infertility is hard and gut wrenching and the uncertainty is just insult to injury.
Hold on. Just keep holding on.
I just found your blog and I LOVE it and I LOVE You. You are such a great writer and I identified with so many of your thoughts. Maybe it’s because I live in the Twin Cities too? I’ll be reading! Often.
That doctor was a twit. What a horrible thing to say to someone who just had an invasive, uncomforable procedure. It’s right up there with “just relax!”
Feeling sad is ok. As women, we spend our entire lives being surrounded by messages that suggest our only worth is our ability to bear children. And I think we get a false sense of control over our body from birth control pills. When we suddenly learn that we can’t control our body and that the baby thing is a lot harder than most people claim it is, we have to confront a lot of demons. And those demons include our own biological clock, our own dreams, our own sense of self. So feeling sad is reasonable. So is rage and frustration. I’m glad you have your blog to allow you an outlet for some of your emotions.
Oh dear God, I had that test too and it was excruciating! And I was also told that it wouldn’t hurt. I cried during the procedure and the doc was like, “do you want me to stop because if I do we won’t get the results but if it’s really that painful I can end it.” Obviously I said, “just finish.” But I couldn’t believe it hurt that bad. I’m so sorry. But I’m glad your cervix is so pretty!
I’m so sorry… your experience was terrible and made even worse by someone who, well, shouldn’t be allowed to speak. Ever. :(
I had the same procedure a few years ago, and though I don’t remember the pain so much now, I do remember crying my brains out too and feeling absolutely terrible. My doctor said something about the dye “clearing the cobwebs out”, so hopefully it will for you too.
Oh you poor thing. That is just awful–and by “that” I mean the whole thing: HSG, the need for an HSG, stupid doctor, etc.–and by no means do you sound whiny. I had a procedure involving the ol’ cervix over a year ago that was so painful I still get the heebie-jeebies thinking about it. And you’re right–there are no words for that kind of pain. I’m so sorry you had to go through such a physically and emotionally painful experience.
I wish I could beam a nice bottle of wine and the perfect, mind-numbing DVD to your house right now. Hang in there. I’ll be thinking of you.
I was going to write about how much HSGs suck and IF and the loss of control, but since you want to talk about something else, I have to say that my new favourite phrase is “groin involvement.” I think I’m going to throw that into conversaiton tomorrow. “You know, there was some groin involvement.” Or, “Plastic instead of paper would be great because of groin involvement.” Or, “You better make it a grande no-foam latte–and hold the groin involvement.”
I know you and Dr Dr have a thing, so I’m sorry, but what a bitch. I wonder if she has any clue what a violating experience an HSG can be. If it makes you feel any better, I cried for days after mine. The whole thing just pisses me off.
mmmm, tumbler of wine. Listen up lovey dove - no amount of preparation can prepare you for the loss of control involved in these procedures, so don’t be hard on yourself. I remember thinking (and thank you for bringing my hsg back to me SO vividly three and a half years later)as I was walking to the procedure room thinking what the fucking fuck am I doing??
What I’m trying to say is - it gets better. Well, easier, yep, easier, not better, it kinda gets worse, but easier. So, um - are you serving up drinks outta that ute yet?
So sorry about that nasty HSG… I have had 3 of those really painful ones, I am sorry that you had to go through that.
Take care