Comments on: Also on the List: My Daughter’s Cardiologist, My Daughter’s Oncologist, and My Daughter’s Plastic Surgeon. *UPDATED* http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/ Deplorable solipsism? The new face of literature? Or merely a clever procrastination device... Mon, 21 May 2012 20:34:45 +0000 hourly 1 http://wordpress.org/?v=3.3.2 By: Flotsam » Organism. http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/comment-page-4/#comment-329533 Flotsam » Organism. Tue, 31 Mar 2009 01:04:18 +0000 http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/#comment-329533 [...] A year ago, they pulled Simone’s umbilical line and a large clot/fibrin sheath was left in her aorta while a shower of smaller clots went sluicing into her renal arteries. These smaller clots caused an episode of acute kidney failure, which resolved, but the fibrin sheath remained. The hope was that it would dissolve on its own without further incident, but sometime later (I see I neglected to post about this, meaning I frankly have no way to remember exactly when it happened) a second episode of acute renal failure made it clear that the sheath was still shedding clots down the peripheral vessels, and hematology got involved. Simone had an intrajugular line sewn in to deliver a heparin drip, which she kept for some time, but which ultimately failed to do anything. Luckily, Simone’s creatinine (measure of kidney function) returned to normal and the aortic clot/sheath/whatever seemed stable, and the expectation was that it would calcify and become part of her aortic wall. By the time Simone was ready for discharge, a repeat renal ultrasound showed only mild hydronephrosis (dilation of the kidneys), and we were sent on our way. The End. [...] [...] A year ago, they pulled Simone’s umbilical line and a large clot/fibrin sheath was left in her aorta while a shower of smaller clots went sluicing into her renal arteries. These smaller clots caused an episode of acute kidney failure, which resolved, but the fibrin sheath remained. The hope was that it would dissolve on its own without further incident, but sometime later (I see I neglected to post about this, meaning I frankly have no way to remember exactly when it happened) a second episode of acute renal failure made it clear that the sheath was still shedding clots down the peripheral vessels, and hematology got involved. Simone had an intrajugular line sewn in to deliver a heparin drip, which she kept for some time, but which ultimately failed to do anything. Luckily, Simone’s creatinine (measure of kidney function) returned to normal and the aortic clot/sheath/whatever seemed stable, and the expectation was that it would calcify and become part of her aortic wall. By the time Simone was ready for discharge, a repeat renal ultrasound showed only mild hydronephrosis (dilation of the kidneys), and we were sent on our way. The End. [...]

]]> By: Jen http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/comment-page-4/#comment-202336 Jen Wed, 05 Mar 2008 20:05:35 +0000 http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/#comment-202336 Another former NICU mom (31 weeks, 2.5 months in the NICU) delurking to say that I am thinking of you, Scott, and Simone, and hoping the roller coaster ride becomes less nauseatingly torturous in the coming days and weeks. It killed me to realize that my child had more medical procedures and specialists in the first few days of life than I had in my entire life. But when I see the result of all that NICU torture (happy, healthy 16 month old driving mommy a little crazy with his daredevil tendencies), I realize the pokes, prods, and more invasive procedures were worth it. Another former NICU mom (31 weeks, 2.5 months in the NICU) delurking to say that I am thinking of you, Scott, and Simone, and hoping the roller coaster ride becomes less nauseatingly torturous in the coming days and weeks. It killed me to realize that my child had more medical procedures and specialists in the first few days of life than I had in my entire life. But when I see the result of all that NICU torture (happy, healthy 16 month old driving mommy a little crazy with his daredevil tendencies), I realize the pokes, prods, and more invasive procedures were worth it.

]]> By: MJ http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/comment-page-4/#comment-202335 MJ Wed, 05 Mar 2008 19:58:35 +0000 http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/#comment-202335 Sending all the internet help that I can. I'm keeping my fingers & toes crossed for Simone, and positive thoughts to you and Scott. I could eat some chocolate on your behalf if you'd like. I always find that chocolate helps everything. Sending all the internet help that I can. I’m keeping my fingers & toes crossed for Simone, and positive thoughts to you and Scott.

I could eat some chocolate on your behalf if you’d like. I always find that chocolate helps everything.

]]> By: Mauigirl52 http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/comment-page-4/#comment-202329 Mauigirl52 Wed, 05 Mar 2008 19:28:00 +0000 http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/#comment-202329 Sending positive thoughts to you, Scott and little Simone. I have mentioned before that I have a friend whose first daughter was born 3 months premature back in the 1980's (she's now in college). When my friend's daughter was in neonatal care during the three months or so it took before she could bring her home, my friend said it was such torture that she wouldn't wish it on her worst enemy. Thinking of you and hoping your torture turns to nothing but happiness very soon!!! Sending positive thoughts to you, Scott and little Simone. I have mentioned before that I have a friend whose first daughter was born 3 months premature back in the 1980′s (she’s now in college). When my friend’s daughter was in neonatal care during the three months or so it took before she could bring her home, my friend said it was such torture that she wouldn’t wish it on her worst enemy. Thinking of you and hoping your torture turns to nothing but happiness very soon!!!

]]> By: silene http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/comment-page-4/#comment-202323 silene Wed, 05 Mar 2008 19:12:18 +0000 http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/#comment-202323 Delurking to offer my prayers for Simone, and for you & Scott. I'll be keeping you all in my thoughts. Delurking to offer my prayers for Simone, and for you & Scott. I’ll be keeping you all in my thoughts.

]]> By: Becki http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/comment-page-3/#comment-202321 Becki Wed, 05 Mar 2008 18:48:58 +0000 http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/#comment-202321 Sending more prayers and love, and eager to hear whatever news you have--but hoping for good, good news. Sending more prayers and love, and eager to hear whatever news you have–but hoping for good, good news.

]]> By: Nicole http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/comment-page-3/#comment-202316 Nicole Wed, 05 Mar 2008 18:26:25 +0000 http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/#comment-202316 Wishing your beautiful little girl great strength and resilience and sending all the positive energy I can from Los Angeles, California. Wishing your beautiful little girl great strength and resilience and sending all the positive energy I can from Los Angeles, California.

]]> By: Floyd http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/comment-page-3/#comment-202296 Floyd Wed, 05 Mar 2008 16:02:51 +0000 http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/#comment-202296 Sending you all my prayers. Sending you all my prayers.

]]> By: Marti (from Michigan) http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/comment-page-3/#comment-202232 Marti (from Michigan) Wed, 05 Mar 2008 08:12:51 +0000 http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/#comment-202232 I didn't mean to go so crazy with the "religion" thing. But, I am still praying for Simone and you and Scott. I have her name written down on a piece of heart-shaped paper and have it with me all the time except when I am sleeping. I pray for her often. I hope things are going well. I hope they did an angiogram to check for blood clots, and then blasted them away. I hope all is well. I didn’t mean to go so crazy with the “religion” thing. But, I am still praying for Simone and you and Scott. I have her name written down on a piece of heart-shaped paper and have it with me all the time except when I am sleeping. I pray for her often. I hope things are going well. I hope they did an angiogram to check for blood clots, and then blasted them away. I hope all is well.

]]> By: Ann http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/comment-page-3/#comment-202203 Ann Wed, 05 Mar 2008 05:14:02 +0000 http://flotsamblog.com/2008/03/03/also-on-the-list-my-daughters-cardiologist-my-daughters-oncologist-and-my-daughters-plastic-surgeon/#comment-202203 Of course Scott is right - the ups really DON'T cause the downs, but man, it's easy to feel like the moment you let your guard down something truly awful will happen. Just remember that although things may be horribly and wildly out of your control, you *are* doing the very best you can to mother Simone through this. Don't downplay your contributions, she knows you're there loving her! You are all doing your best to play the hand you've been dealt, and playing it well. I love the picture of you holding her, and boy, is she a beautiful 29 week-old. For what it's worth, she *looks* like a survivor. Wishing you well... Of course Scott is right – the ups really DON’T cause the downs, but man, it’s easy to feel like the moment you let your guard down something truly awful will happen. Just remember that although things may be horribly and wildly out of your control, you *are* doing the very best you can to mother Simone through this. Don’t downplay your contributions, she knows you’re there loving her!

You are all doing your best to play the hand you’ve been dealt, and playing it well. I love the picture of you holding her, and boy, is she a beautiful 29 week-old. For what it’s worth, she *looks* like a survivor. Wishing you well…

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