Part One.
“Even the miniscule, erratic wireless signal at the window seems to have been extinguished, so heaven only knows when I will be able to post this.”
That was the first sentence of the entry I was writing at 12:30 p.m. on February 7th. I remember noticing as I wrote that it felt remarkably like the first day of my period.
“Thalia asked why they aren’t giving me anything for contractions, and the answer is that contractions are often a sign of infection (which could be dangerous to Simone), and they don’t want to mask them. As soon as my water broke I was started on antibiotics, which were discontinued a few days ago. So they are certainly trying to prevent infection, just not contractions.”
That was the last paragraph I typed. An hour later I was in labor.
I wasn’t going to write a birth story. But in the interest of this week’s ENEMA OF THE SOUL, I will give you the facts. It was a Thursday. I was 25w5d. I had been on hospital bedrest for almost two weeks; Ames had been dead for nearly a month, his water broken for 12 days. It had been OVER a month since this picture was taken, so thanks to my short torso, I was shaped like a sideways camel, a paranoid camel who felt compelled to store lots and lots of extra water in his hump—you know, for the apocalypse.
As awed as I was by the quality of care I received on bedrest, and that Simone received in the NICU, my labor experience still upsets me. I am not talking about the loss of some patchouli-scented experiential ideal. My birth plan had been downgraded from “get the babies out alive” to “get at least 50% of the babies out alive,” so I think my expectations were pretty well managed. What I am talking about is a complete lack of communication, leading to the impression that while I was ostensibly a patient in the antepartum unit (I was never moved to Labor & Delivery), I had essentially been left to my own devices. It strengthened my newly-forged opinion that pregnancy and birth are a miracle not in some pseudo-spiritual sense, but in that it is a goddamn MIRACLE anyone makes it out alive.
I started having painful, regular contractions at 1:30 p.m. At 2:00, a cervical check revealed that I was not dilated. Simone was transverse, and I’d been informed that if I was really, truly, no-turning-back in labor, I was likely to deliver by C-section. They would “try to keep me comfortable.” I was given some stick-on heating pads. A new nurse started at 3:00.
The new nurse put me on the monitors and, as always, had a hard time picking up Simone’s heartbeat and my contractions. She picked up contractions at two minutes apart for a while and then got nothing for 15 minutes while they continued. I was given a dose of Vistaril to relax me; it helped a bit and spaced the contractions to five minutes apart. By five o’clock the Vistaril had worn off, and the pain felt grinding and insistent, like some efficient German industrial process. I remember telling Scott in a low voice that this was it. Dinner arrived and I asked the nurse whether I should eat, figuring they might want me NPO for surgery. She said she would check with the doctor and disappeared.
Over an hour later Scott and I had asked for our nurse at the nurses’ station several times with no response. I was starving, and nauseated from the pain and lack of food. I ate half of my sandwich, one bite at a time: chew chew chew, stop for contraction. The nurse returned and told me the doctor had said not to eat, just in case.
During contractions, Scott would watch the monitor and tell me when the numbers stopped rising, indicating that the worst was over. I was half-watching episodes of Sex and the City, trying to focus and keep myself calm, but the relentlessness of the contractions—one after another—had started to make me edgy and desperate. We asked the nurse to call the doctor. I wanted to know what the plan was, and I wanted something for the pain. The nurse vanished for another hour or so, and when she returned she said the doctor had ordered Demerol, but that the pharmacy hadn’t sent it up.
More time passed. It was quiet and dark. Still no Demerol. It’s hard to remember what happened during this time. They had me on the monitors at some point, adjusting the disks over and over, failing to get a consistent strip. I had started passing blood and mucous. I asked again about The Plan, and the nurse said the doctor wanted to see how I was in the morning. I said I didn’t think I could make it that long, and was reminded that I hadn’t been dilated when they checked me at 2:00. Eight. Hours. Earlier. I was told they couldn’t reexamine me because of the risk of infection. The nurse left. My cervix was never checked again.
More pain, for I don’t know how long. I was shaking. I finally got my shot of Demerol, which might as well have been a single, expired Tylenol. I threw up. They gave me more Vistaril and said I should try to sleep. I told Scott to go to bed. There didn’t seem to be anything anyone could do. I lay on my side facing the window, holding the bedrail, the contractions seizing me in what felt like one undulating wave. I could feel a pushing down and leaking with each spasm. I was afraid I would give birth to Ames in bed, terrified he would come out in pieces. Everything smelled like death. I was making noise—Scott later told me I sounded like a porn soundtrack, and you could hear me in the hallway.
There had been a shift change. The new nurse heard me moaning through a contraction and told me to breathe. I wanted to say that I was hours past “breathe,” and instead I begged her to contact the doctor on call. “It’s an EIGHT,” I wheezed, referring to the pain scale. EIGHT was the highest number I’d ever used, higher than my kidney stones and miscarriages. I always figured I’d save my TEN for an attack by bears or a slow dismemberment by spork.
At some point I went to the bathroom and passed more unpleasant goo, and then I fainted, pulling the emergency cord as I fell. I was surrounded by nurses who helped me onto a chair and back to bed. They all told me to breathe. I wanted to kill them, but was too tired.
It was after 4:00 a.m. The doctor on call from my perinatology practice appeared. I had met her once before, when she pronounced Ames and Simone “ideal” at my 20-week anatomy ultrasound. She said I was “probably in early labor.” Because of Simone’s position, we needed to decide whether to do a C-section or attempt to stop the contractions with another bag of Magnesium. She looked at me expectantly, and I realized she meant I needed to decide. I said I was confused, as the other doctors had told me it was best NOT to stall labor. She nodded again, thoughtfully, and waited.
It had been 15 hours. I did not want to be the one deciding to deliver my child at 25 weeks. How would I ever know whether I had made the decision because of the pain, the horrible pain that would not stop? I kept asking the doctor what she thought I should do and she kept demurring. Finally she said she didn’t think the Mag would buy us more than a few hours and recommended the caesarian. I was relieved, and ashamed of being relieved.
Scott was whisked away; I was given something foul to drink, and then briefed by an anesthesiologist who had missed his calling as an auctioneer. Nurses from Labor and Delivery had come to take over, among them my favorite from the night I was admitted, who’d held me while I panicked and retched and went into shock after Ames’ water broke. Now she prepped me, and I was wheeled to the OR. I leaned into her while they swabbed my back. I’d always thought I’d be terrified of the spinal, but by then if they had told me that plunging a red-hot serrated bread-knife into my eye would relieve me of all sensation below the waist I wouldn’t have hesitated. I had one more terrible contraction…and they were gone.
I started babbling gratefully that I couldn’t feel a thing. Scott held my hand. We stared at each other. I heard the time called and realized the incision had been made. Something happened with my blood pressure, and I threw up for the last time in my pregnancy. I felt a rolling and a rustling, and heard the doctor say “Poor little thing.” Ames was out.
More pulling. Then, 5:35 a.m.: they held up a wormy purple-red bundle. I saw a leg moving—oh my god, it was moving, it was a live person! I gasped and gasped and laughed and cried and they took her away and I told Scott We have a baby! We have a daughter!
Scott left with Simone and I heard the doctor talking about how much she loved her new staple gun. I heard the CHUNK, CHUNK of the staples. She appeared by my head to tell me that my uterus had been completely thinned out by contractions. “I’m sorry,” she said, “You didn’t seem like a woman in active labor.”
In recovery, a nurse asked whether I had any pain and I burbled the same words I would repeat for the next two days: “But no contractions!” That night I would have nightmares about contracting and wake to find it was only the automatically-constricting pressure cuffs on my legs.
They wheeled Simone into recovery on her way to the NICU. She had cried before she was intubated, they told me. I was so proud. Her eyes were fused shut, she was red and wrapped in plastic, her head the size of a bulb syringe: she was beautiful. I reached my hand into her isolette and she gripped the tip of my finger. In a few hours I would spike a fever, and they’d hang my IV poles with festive bags of broad-spectrum antibiotics. We got her out just in time.







87 Comments
I am so sorry that you had to go through that.
Goodness me that must have been awful. *hugs*
No words, Alexa. Other than I’m so sorry.
I know we have never met but I believe you are one of the strongest people I have ever encountered. I can’t even imagine….. hug
weeping for and with you, feel honoured you shared that with us xxx
Oh, Alexa, I am so sorry for the ordeal that you had to endure. You must have felt so alone at a time when you needed the medical staff to really, really take care of you.
You are such a gifted writer. While I was moved almost to tears, I also had a fit of giggles when I read the phrase “an anesthesiologist who had missed his calling as an auctioneer”….hee hee!!
I am in awe of your strength and courage. Thank you for telling your story.
You are very brave, and your daughter is beautiful!
Completely heart wrenching. Thank you for being strong enough to share that. I know I wouldn’t be.
Alexa, I have never commented, but I had to this time. I am so upset at how your labor experience was (with Drs. and nurses). I wish it could have been better. You are a wonderful mother. When I found your blog, I had to read all the way back to the beginning. And I cried. Thanks for sharing with us.
Alexa, I don’t even know what to say.
I cannot fathom…
xx
J
My heart hurts just reading this – it’s so good to already know that Simone is here, thriving, cute as a button. I wish I could blow kisses back in time to you, but I’ll just leave some here -
xxx
Alexa. Heartbreaking. And miraculous. For all the reasons you state. Thankyou for sharing this story.
Speechless.
Thanks so much for sharing your story. I’m so very upset and sad and scared for Past Alexa, and send her and you my love!
I am so sorry for what you went through. You have such incrediable strength…I cannot even fathom being treated like that while in labor. Much love to you.
Thanks for sharing so much of your story.
Thank you so much for doing this. It is so touching to me to hear all of it, and I can’t tell you what it means. Again, I am so sorry you lost Ames, but SO glad Simone made it. You are so strong… I am continually amazed.
I’m so glad to be reading this with the knowledge that Simone is well and healthy and happy and that you are recovered completely.
And as always, I’m so impressed with your writing, especially in the context of such an emotional experience.
Alexa, you have every right to be angry. Jeebus, *I’m* angry reading this, and I don’t mean at you or the universe or any grand Plan gone awry — I’m angry at THEM. This whole nightmare sounds extremely poorly handled and mismanaged, and that’s putting it nicely.
Just me, but when you’re through with enema of the soul — once you’ve found the words and possibly some strength — I’d get some of this down on letterhead and send it to a few people, beginning with your hospital and OB. Won’t do you a lick of good, we all know that, but anything to pay it forward so that someone else doesn’t have to sit around in active labor while people twiddle their thumbs.
I’m really just so sorry. Please keep writing.
This makes my heart break for all of you. I can’t believe you were abandoned like this — it would hard to believe under ideal conditions, but in this case, it’s unforgivable.
This is beyond startling…
oh, oh. oh. i am heartbroken for you, and your children, and you again. i’m in my third year of medical school, and this is the kind of story that makes me on the one hand, reconsider my choices, and on the other, resolve to fix things. i am so sorry it was so awful.
It’s always amazing to me how hospitals and drs and nurses can be such assholes. I think this is a really good idea to get all of this out. You have a therapist already I think I remember you saying, but getting it out of you and onto “paper” so to speak is a very good thing. A friend who gave birth prematurely ended up with PTSD because of her experience, so I don’t think what you are feeling is abnormal AT ALL.
As one who lost twins to infection at the same gestational age (also after nearly 2 weeks of hospital bedrest) this is indeed upsetting to read…because it sucks, because you went through it, and because reading your account allows me to remember some of the bits that I defensively blocked from my memory. (I’m grateful to be able to recall some of the details.) I’m still holding my breath for the part that might be offensive, or whatever, to other parents that lost babies…trying, again, to be brave.
When I read 6 months worth of your story in one sitting, I sensed that something was missing. I’m glad you decided to write these parts. I think you’ll feel better when it’s over.
(Geez, I think I may have had my twins at 25w5d or 25w6d too. I think I rounded up to 26w to make myself feel better about the situation.)
I often find myself in amazement of your blog. Very often it seems that you have crept into my brain and written down what I was thinking. This week I found myself reexamining my birth story and feeling complete disappointment that I cannot get over, even 5 months later. I had my daughter at 29w4d. I had been in the hospital for 6 weeks and no one ever thought I would go into labor, it was pretty well known that they would decide the baby was in distress and whisk me away for a c/s. I spent an entire day in so much pain I thought I would die and knew then that my early dreams of a drug free childbirth were the thoughts of a crazy woman. Imagine my surprise when it turns out that pain was active labor and I was 8cm dilated. My husband was out of town and unable to make it back in time and I will NEVER forgive myself for not knowing I was in labor sooner and *causing* him to miss his child’s brith.
I don’t know how to get over my failed birth experience even though I know we are truly blessed to have a happy, healthy baby. It brings tears to my eyes just thinking about it and I hate that other women have to experience it too.
Thank you for your blog and for putting words to the thoughts in my head :)
Oh, sweetie, what a hideous experience. I think purging this is a very, very smart thing.
1. I hope that this gives you some measure, even if minute, of peace to be getting your story down. 2. You do it so beautifully, it’s hard to remember it’s real. Not that you would ever doubt…3. Even from my own, not critical deliveries (but 4 sections), I wholeheartedly agree and understand all too well that you are damn lucky to get out of a hospital in some semblance of a state of living. You are vulnerable, terrified for yourself and baby, and no one tells you the hell what’s going on. And they always DISAPPEAR. And don’t listen AT ALL to you. It’s a horrible thing, our system of delivering babies…they may save you, and her, but you’ll not be sure of if until weeks of being home have gone by…lastly…just hoping more peace for you as time goes by…
Thank you for sharing your story in such wonderful prose. I’ve been reading your blog for some time and have determined that both you and Scott are exceptional people.
Now…for the next time you’re in a hospital and can’t seem to get anyone’s attention (specifically nurses), first, have Scott find the Charge nurse and tell them you’re feeling slighted and tell them (don’t ask) that you want to speak to the doctor (face time). If that doesn’t work, go to Customer Service and tell them you’re not getting the care you need and deserve (remember, you’re paying for this). They usually jump on things like this. But, if that doesn’t work, contact the hospital administrator. Have the names and numbers of these folks on hand before going to the hospital.
Sorry…that’s MY maternal instincts kicking in.
The good thing in all this is that you ended up with a very VERY beautiful little girl (who I think looks just like Scott!). Adorable she is!
As a nurse, I’m _ashamed_ of the care you received (or rather, DIDN’T receive) during your labor. I’m truly sorry you had such a horrible experience, and I’m very grateful you’ve decided to share this with us. Big hugs to you, your husband and your beautiful daughter.
My heart just breaks for you. I am so sorry this happened to you. And I’m so angry that you had to go through this. No one should be made to feel alone while going through such a hard labor and under such difficult circumstances. Hugs to you and baby Simone. You are a very brave woman.
oh, alexa. i’m so sorry you had to go through this.
you are one of the strongest, most courageous women ever.
Alexa, thank you so much for sharing your story. I also cannot believe how callous all the doctors and nurses you tried to ask for help were. I wish so much that it could have been different. But so very, very, very glad that you and Simone made it through all that!
Oh Alexa. I’m just hurting for you.
Oh you brave brave brave, beautiful thing. I just love you to pieces.
Virtual hugs. I love that last picture. So hopeful!
Let yourself feel it. I had a very similar experience, except at 31 weeks. My daughter was breech and posterior, so all of the pain I felt was in my back. Several tests and a uterine monitor failed to pick up contractions. So I spent the better part of 24 hours, largely by myself, laboring. I will be eternally, profoundly grateful to the kind nurse who was able to see me shaking and clammy and realize I was in labor – fully dilated when I finally agreed to be checked.
The remembrances come in waves. A smell, a sound, the tiny scars on my daughter’s foot where she blew IV lines. Those paper towel dispensers with the sensor will immediately kick me back to NICU scrub mode. But now, at two years out, I don’t get the panic much anymore. Just the occasional pinprick of tears and a silent “thank you.”
A shocking story.
I’ve recently been amazed to find it’s not unusual for hospital patients in general to be abandoned in this way. The decisions about care, and simple care itself, are often left to the person who accompanies the patient. RNs, CNAs, and MDs are just not there. They vanish.
You and Simone made it out alive. Thanks be.
Whoa girl. I just started reading your blog after Simone was born, and after this post I stopped what I was doing at work and read your archives. Enough to cry for Ames. Enough to be simply amazed that you have been able to maintain your strength, your humor, through all of these trials. You are an amazing mom and a remarkable woman.
Oh my…oh my god. 15 hours of labor for a transverse preemie they assured you they would have to have a C-section for anyway? You are AMAZING. You LIVED THROUGH THAT. SIMONE lived through that. I remember the post a friend made when Simone was first born, about how you wanted “full credit” for the labor before that. You get extra credit! Gold stars! An honorary doctorate! My eternal love and admiration! (which you had anyway, but GOOD GRIEF.)
I think the nurses get so used to a) people who do epidurals right off and don’t feel much pain and b) people who scream and scream, that when someone comes along who is in great pain but NOT screaming, they assume she isn’t in labor. Same thing happened to me, and totally screwed by experience as well.
I hope the catharsis of writing helps – it’s painful to read, I can’t even imagine the pain (I’m talking spiritual & mental paiin here)
I am so sorry this has to be your story, but i’m glad for your sake that you’re writing it. I can completely understand the fear and anger and sadness and oh that fear – even while you know you’re so blessed and lucky to have the beautiful prize winning daughter who smiles back at you.
How horrific. Thank you for sharing and I hope the process helps you as much as it will help someone who finds your blog and needs to see your words. Maybe another mother, maybe a doctor, maybe a nurse – who knows – but your words will change someone’s life. And someday Simone will read this and cry for her brother and for you and Scott and she will know (again – because I’m sure she will know long before that day) what an unbelievably strong mother she has and the depth of your love for her and Ames. I wish you peace and rest once you have all this out of your system.
thanks for writing this so honestly. I lost one of my ID twin sons, Jonathan at 7 months (again, no known reason) and due to one sac, one placenta, I carried both my boys until 33 weeks when Lewis’ lungs were ready. One C-Section later, I had two boys, one alive but struggling to stay with us and the other one, dead. It’s hard to capture those feelings, joy/grief/guilt, oh the guilt, but you managed to put it into words, I will wait with baited breath for the next installment. Possibly unbenonst to you, you are telling the story of many of us. Thank you. *crying now, must go*
Love and hugs your way. I have no words, other than disbelief at how the medical staff acted.
I’m so very happy that Simone is doing so well. I’m truly, truly sorry that you lost your son. Hugs, mama.
I’m going to tell you — this being ignored during labor — this is exactly what happened to me at 25 weeks as well. It’s like they didn’t think that a woman at 25 weeks could have REAL labor.
I am so sorry. So glad of the wonderful way that things turned out for Simone — just like my 25 weeker, Isaac!
Erin
I am utterly horrified by this, both by the amount of time they left you alone and in pain, and by the doctor who expected you to make the medical “call” on your course of treatment. Ultimately, yes, it is the patient’s decision, but its the doctor’s responsibility to present the options so that the care received is the correct course of action clinically. Thank god you are knowledgable and smart enough to know what you need, because I shudder to think what might have happened to you and to sweet Simone.
I am so sorry this was your experience, your life, your birth story. Talk about making the worst (the doctors & nurses) of an already god-awful situation.
I was fine until I read “poor little thing.”
You? Are amazing. Thank you so much for taking us on this journey of your soul. I’m honored.
I’m so sorry. They should have taken better, much better care of you. I’m so glad Simone is doing so well now. Thank you for sharing this story.
This hurst so much to read, I can’t even imagine living through it. I am so sorry.
Any story that depicts bringing your child into the world should be celebrated. That being said, I am furious that you were so neglected and left to feel so alone. I had pPROM at 26 weeks and spent 5 weeks waiting to go into labor in the hospital. I had many false alarms and was terrified, and if the staff had not been there to hold my hand I don’t know what I would have done. Yours was a much more complicated situation than mine, and it blows my mind that you were left to suffer alone, both physically and mentally.
You are a very amazing person to be able to write this only months after you experienced it.
I should clarify that I don’t mean you should have to celebrate this story despite its difficulty. I only meant that since it was Simone’s birth story I did not want to disrespect the joy of her birth, no matter how it came to be.
wow, how terrifying. i’m amazed at all the details you remember…childbirth was pretty traumatizing for me as well, but i can’t seem to remember all the stuff that happened.
I’m so glad, selfishly, that you waited to write this until now, when Simone is happy and healthy and home and terrorizing you all with a nap strike. Had I read this earlier when Simone was bradying in the nicu I don’t think I could have borne it.
Except, of course, you did have to bear it, and in real time. I can’t imagine. When you write about being afraid you would give birth to Ames in the bed, in pieces, my heart just caught. I want to catch a flight back in time, and be with you in that horrible tiny antepartum room, with cold washcloths and tears, because it is unfathomable that you had to endure that alone.
There really is nothing to stay. I am so sorry.
I can’t believe they brushed you off like that! Where did you deliver?!!! I delivered my son at 32 weeks at FV Southdale…I had a good nurses and bad nurses during my preterm stay as well as during labor and delivery…it makes such a difference. Just because they do this every day doesn’t mean that WE know what’s going on…and it’s scary as hell for us. I’m freaked about my next delivery experience…I’m 19 weeks pregnant with twins…just had the anatomy US last week…two more boys. Cross your fingers.
I hope you continue to write these posts…writing has definitely helped me when facing my son’s child abuse from last year…just like you said, it’s when you’ve had a few months/year to reflect on what the hell you just went through, when you deal with the emotions.
Whoa. I seriously felt like I was holding my breath when I read this post. You and your husband and definately Simone and Ames did not deserve that kind of treatment. The staff at the hospital you delivered should be ashamed of themselves.
I wish I knew why they never believe we’re really in labor. The nurse thought I had a UTI until she checked me, fully dilated and bag bulging at 30w4d.
Someone upthread said they would never forgive themselves for not knowing they were in labor. I had back labor too, labored all day not knowing, and every time I see a picture of my son in those early days I kick myself for not knowing early enough to try to stop labor.
The hospital labor machine can be so awful! I’m so sorry you had to suffer through all those contractions. I FEEL you! I’ve never used a doula, but I think I would love one for just these reasons.
I’m mad for you at how your labor went! The nurses at the hospital I delivered at were great–it amazes me that there is such a broad spectrum of quality in care for hospitals in the same metro!
I had chills reading this. I’m so sorry you had to go through that.
Something just doesn’t quite feel right in having a grief counselor contact you beforehand to work out a “birth-and-what-happens-after”-plan for you and Ames and Simone, and then just letting you lie there and suffer through all that without anyone listening to you or helping you or for the love of god even just get back to you with answers or a snack or anything else you might need without having to ask for it a thousand times. Shit, I am so sorry you’ve had to endure that, on top of everything else…
…that, and just thinking about what happened with Ames and the struggles Simone and you and Scott had to go through make me shiver and cry and feel so so so lucky that we have our twins lying upstairs sleeping peacefully.
When we got to the hospital after my daughter’s water broke at 32 weeks and they could not find her heartbeat for the first 10 minutes, my own heart just about stopped. For those 10 very long minutes we thought we’d lost her, and those were the worst and longest 10 minutes of my life. It was as if the world had just stopped turning. When we finally heard her heart beating alongside her brother’s we couldn’t believe our luck. And sometimes I still can’t.
I don’t know you and you don’t know me, but I will never forget Ames and I am so so so happy that Simone is doing so well. And that you and Scott are still standing. Even when she’s terrorizing you with a no-napping-strike…
What an awful birth experience, the fact that they didnt call your doctor when you asked is horrible. I do hope when/if you can that you write to the hospital specifically the maternity department and let them know of your feelings. No one should have to endure what you did, and not having excellent care on top of that, is just salt in the wound.
Since I have a good friend who has lost two babies, I wanted to say that I hope you were given a keepsake box and perhaps some photos if you wanted them of Ames. My girlfriend was so much in grief with her first loss, that she didnt know what she would need down the road, the hospital took about 4 pictures, made a plaster cast of her little girls foot and hand, and gave her a memory box. In retrospect she wishes she had more photos…. she was a beautiful child (I keep photos of her babies, as I never want to “forget” that they were real, they were loved and they were beautiful)…with her second child (delivered too early at 22 weeks 5 days) the hospital sent a photographer who took quite a few BEAUTIFUL photos…. she cherishes them. Before going through this with my best friend, i never would have understood that need to have those pictures. I am thankful that these days hospitals seem to know that this sort of memory is needed. Years ago when my aunt went through a similar experience, they did everything very differently.
Jesus, honey.
One thing I learned from Horrible Birth Experience #1 was that when you are in pain, you must scream, loudly, or no one will believe you are in pain. No one thought I was in labor either, or believed me when I said my water had broken. If they had, I might have avoided the infection, the 2/2 Apgars, and the NICU stay.
I’m glad you have shared this, and can fully understand why the soul enema has waited this long. I’m sorry Alexa.
Funny how we’re greeted with that chubby, pink little Baby of the Week (is it the same one each week? I can’t tell), in stark contrast to a newborn Simone. How far she has come.
I am so sorry. Oh, God, SO sorry. :(
I found your blog shortly after we learned at 20 weeks that our “Twin B” (from IVF) had multiple severe brain abnormalities and would most likely not survive to be born. My sweet Miriam did eventually pass away at 31 weeks and I delivered both Miriam and her sister — my beloved Allison — at 32w3d due to an infection that had set in due to her Miriam’s death. Allison was born with a 100.1 degree fever and spent 15 days in the NICU. (To this day I can’t believe how lucky we were, and she was, to be discharged so quickly.) Your blog made me feel as though I wasn’t alone back when I was reeling with the hell that was the last half of my pregnancy.
When I read your post today I cried. And cried. I just cannot fathom having to deal with such callous, lackadaisical medical care while in the throes of labor on top of everything else you were dealing with at that time. I remain to this day in complete and total love with each and every member of the medical team that took care of me and Allison from admission to discharge. I’m so sorry you weren’t taken care of as well. SHAME on them.
…just…wow…
makes looking at all pics of her today so much more amazing, fragile, precious, wonderful.
Oh, just wow. It’s unbelievable how poor care can be when it is needed most. I am so glad that Simone is well now.
And that you kept all this just to yourself for so long seems a small miracle in itself. Best wishes.
i made it through your post without shedding a tear, and then i saw that last picture and started sobbing. i am so sorry for the loss of your baby boy, i am sorry you went through such a painful, lonely birth… thank you for being so candid. i’ll be back for the next part, tissues in hand.
I want to hug you so bad right now.
My goodness.
Thank you Alexa for sharing such a huge emotional experience with us. I hope so much that this will help you and Scott to deal with your grief at the loss of Ames, the appalling treatment given during labour and the nightmare that was NICU in the early days. Sometimes I wonder why some medical staff bother to speak to patients at all as frequently the information or answers we give are ignored or disregarded so contemptuously. It’s a constant amazement that you have Simone home with you, hale and hearty, and still kicking ass, bless her little sandmanista cotton socks ;-)
Hugs to you all, you are a truly strong bunch of survivors.
PS I’m getting another box of tissues ready for the next installment…
I gave birth to my beautiful blessing Haven in January and when I read your post I am saddened and angered, and yet also very happy… Simone is such a fighter, and what a big beautiful girl she has turned out to be! But your treatment in the hospital makes me ill… I am a nurse, and nobody knows better than me how hard we wrok and what a struggle it is to maintain our sanity… And yet that is no excuse for ignoring a patient in pain… I know that the doctor yells at you when you call him after hours, and I know that you have two patients too many, but you take care of them the way you are supposed to because IT IS WHAT YOU DO! I’m so sorry for your unpleasant experience, and I read this realizing that all babies, no matter how they get here, are sweet, sweet angels… I’m glad Simone has you!
Oh Alexa…. I don’t even know what to say. *hugs* I wish things had gone better for you while you were in labor. I wish someone, anyone had listened to you, helped you more than they did. But I am SO glad for the miracle that is Simone! She is a delicious little bundle and such a fighter. (My mom is reading over my shoulder and she too agrees that Simone is absolutely beautiful.)
In awe of your strength and the miracle that sweet Simone was once so very tiny and is now thriving, beautiful and plump.
Oh. My. Heart.
Ugh, somebody needs to be shot. Maybe a lot of somebodies, because while “preterm labor doesn’t feel like regular labor” (as my doc told me) these people clearly had no clue what to do with a woman in preterm labor.
You are an amazing strong woman with an amazing strong girl.
Good God.
That you have sounded so positive in your posts after this…. Wow. Thank you for sharing your life here.
I’m sad that this could happen to anyone, ever. At the very least, Simone will know just how brave and strong her mommy is.
As a physician (though not an OB) I just want to apologize to you on behalf of my profession, if I can do such a thing. I am really sorry for the way you were treated. Thanks so much for sharing your amazing story.
I’m so sorry. I really cannot add anything to what the other commenters have already said, but I did want to express my sorrow about what you went through to bring Simone into the world.
I missed your earlier prelude post until now, but I, too, am glad you are writing about this. I think often of Ames, in addition to you and Simone, when I read your posts.
incredible…. please keep writing!
Wow. I’m speechless.
As difficult as this was, I’m sure, to write — thank you for doing so, for putting it out there for others who may share a similar story so that they don’t feel so alone, so isolated.
Like you, I’m left in awe that anyone gets out of pregnancy alive.
You’re an amazing person who is surely raising a beautifully strong daughter, and I’m so sorry Ames isn’t here with you, too.
Ooof! XO
Holy Jesus, Alexa. Wow. This is definitely the kind of experience that changes you forever.
Thank you for being so brave and sharing. I can’t imagine how it must feel, even now, to sit down and relive it through writing. I just want to give you a big hug and say I’m just so glad she’s here and that the two of you are okay.
(I also hope that you’re sleeping through the night again soon!)