Part Two.

by Alexa on August 20, 2008

I have started several posts about Ames in the past month, but have finished none of them. Every night for the last week I have rearranged sentences in my head before falling asleep, trying to find some way to talk about him, and I am foiled again and again by how complicated it all seems, and how tired it makes me to try to tease any order from my thoughts. And the longer I let it go, the more there is to say, and thus the more daunting the task of saying it becomes. The talented Tash wrote a post in which she quoted Amy Bloom: “Everyone has two memories. The one you can tell and the one that is stuck to the underside of that, the dark, tarry smear of what happened.”

I switched psychiatrists recently, and during the obligatory first appointment evaluation, he asked whether I ever feel guilty about anything, and I laughed. Not a tight, sarcastic laugh, but the laughter of the genuinely amused. If there were an Olympics for neurotics (and just imagine the opening ceremonies—the narcissists fighting over the torch, the claustrophobics streaming for the exits), I have no doubt that I would be a medal contender in that category. Sure, anxiety is my specialty, my meat-and-potatoes, but everyone needs a hobby, and guilt is mine. I sometimes read the stories of other women who have had stillbirths or lost a twin, and after sympathy, guilt is my primary reaction, because I should have been where they were, and I wasn’t.

I was devastated when Ames died, but more than that, I was scared. Simone was still in what felt like a uterine death chamber, and when my cervix began to soften, my contractions to increase, the equally terrible possibility that she wouldn’t remain there until viability reared up before me. Within a few days after the no-heartbeat ultrasound, all of my focus had shifted to keeping my remaining baby alive. They say people form strong bonds in times of stress, and after learning Ames was dead I felt closer to Simone than I had to either of the babies before that point.

You know what happens next. Bedrest, bedrest, and more bedrest. A hospital stay, labor, and my eventual C-section. And after it was all over I was giddy with accomplishment, and an amazed, joyful love. I had a BABY, I kept thinking over and over to myself.

They brought Ames to me in recovery, dressed in a pale blue outfit with a hood, a sort of cloak. I would have preferred him wearing nothing at all, as the contrast between his body—marinated for a month after death—and the frou-frou gown was grotesque, like a macabre Little Red Riding Hood. I was on morphine, high from the exhilaration of birth, the long siege over, and all I could think, looking at Ames in his blue hood, was that he looked like Skeletor. Scott held him and cried and I sat staring into his tiny face, wondering what was wrong with me.

With a stillborn baby, you get only one concrete physical image, and it is the image of a corpse. There was beauty, even so: Ames’ perfectly formed feet and long-fingered hands. Still, I could never understand the insistence upon regarding his body a month after death—a time when none of us would be at our best—as essentially him. I could feel Ames stomping inside of me when he was alive, I saw him kick and twist and wiggle on the ultrasound screen. He was not his corpse. Some relatives wanted pictures to display, and this bothered me more than I can express to you. It was not how I wanted him remembered, and I considered his appearance at birth to be private. He still felt very much a part of me, and one of which I was protective. No one else got to know him as he was before he died? Tough. This is an unfortunate fact of biology—I don’t make the rules.

I decided I wanted to see him again, and so the next day we were to say goodbye and send him to be autopsied. There was some confusion about when he’d be brought to my room, and a long wait, and then a nurse (insistent on giving me my 5:00 laxative and changing my bag of fluids) bursting in while we held him. I had arranged for a visit from Now I Lay Me Down to Sleep, an organization that takes photos of stillborn babies for their families. Ames was naked, fragile and softening. Because of how much time had passed since his death, he weighed only a little more than half a pound, and his skin was a nut brown. I had come down from my post birth high enough to register emotion, and finally, I cried. My in-laws came in to see him, briefly. And then it was just the three of us.
I held him, touched him—we had to be very careful—and gave him a kiss. I think I sang him a song. Scott thought he would have looked like me, that he had my chin. We could see so clearly who he might have been, something I search fruitlessly for in the pictures we have from that day. I gave him my middle name: Michel.
The worst part of the protocol is that the time you have is open-ended, and it is up to you to notify the nurse that you are “ready” for them to take your baby away. Ready! It feels like the worst kind of betrayal. We had a few false starts—I handed Ames to Scott to return to the bassinet, and then wailed for him back, sobbing. But eventually we did it, we wrapped him up and called the nurse, and he was gone.

If Ames had been a singleton, his death would have been the beginning of a fierce, consuming depression—this I know. Four years ago, after my miscarriage at seven weeks, I cried every day for months, quit my job, gained fifteen pounds, and obsessively tracked where I would have been in an alternate universe where that baby had lived. I can only imagine how incapacitated I would have been by a loss at the cusp of viability. But as Ames was wheeled to the morgue, Simone was very much alive, having perfusion problems from blood draws and dobutamine, and there was talk that day of her losing her hand or a finger. I was focused on learning to pump, and re-learning to walk so that they would let me go to the NICU. If Ames had been a singleton I would have been alone with my husband as my still baby was rolled away down the hall, my leaking breasts a mockery, my head empty and black inside. IF Ames had been a singleton.

But he wasn’t. And instead of mourning him as he no doubt deserved to be mourned, I gave him little thought in the coming months while I sat at Simone’s bedside, feeling judged and annoyed by those who insisted upon talking about him, and too guilty about my lack of mourning to post about him here. In case you imagined I was grieving him in secret, let me be clear: I wasn’t. First my fear and later my happiness left room for nothing else. If I thought of Ames at all it was in shame; it seemed unfair that others had to endure the crushing grief of a late-term loss, and instead I had somehow snatched Simone from the snappy jaws of fate and skipped neatly over the sorrow with my name on it.

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{ 77 comments… read them below or add one }

Heather August 20, 2008 at 11:03 pm

I am so sorry. I sit here reading and crying. I cannot imagine what you have gone through. **hugs**

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Sarah August 20, 2008 at 11:05 pm

This is both sad and beautiful in its own way, just like Ames.

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another julie August 20, 2008 at 11:05 pm

There is no right or wrong about it. Thank you again for sharing your story.

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Lindsey August 20, 2008 at 11:06 pm

Alexa, this was your best, most elegant, most honest and moving writing yet. Mourning or no, now or later or never, this honors Ames’ memory.

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Heather August 20, 2008 at 11:13 pm

I have no words. I just know that made me cry.

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Melanie August 20, 2008 at 11:28 pm

There should be no guilt for your feelings… I know 2 people who have lost a twin, and both have put their heart and souls and all their focus on the one that is very much alive. If you did not do that, it would have been too much, how could you deal with all of that on top of all the worry, fear and decisions that you had to make regarding Simone????

My best friend regards that open-ended amount of time the same way, it was so horrible to decide when to send her daughter and then not a year later, her son away (both singleton births). I can’t even FATHOM the pain, I only know of the pain of being on the outside looking in and wishing there was something I could do or something I could say that would help… but the words dont exist.

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Sara August 20, 2008 at 11:40 pm

I am – selfishly – glad you’re writing about this. Not that any of us deserve to know any more about the bloggers we read than they desire to give us, but I’ve been wondering about this stuff. Your writing is amazing.

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Jenny August 20, 2008 at 11:40 pm

I cried for you and Ames. For what might have been. And smiled that you had a baby girl to take care of.

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Lisa C August 20, 2008 at 11:41 pm

Words fail. Sending good thoughts out into the universe for you.

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Kerri Anne August 20, 2008 at 11:47 pm

Your ability to so eloquently say what you must, and your honesty in doing so, is both breathtaking and beautiful.

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Kate August 20, 2008 at 11:50 pm

Who says grieving and mourning has to be a certain length of time? You obviously DID mourn Ames, after learning he’d died in utero, and after he and Simone were delivered when you got to say your goodbyes. You did what you had to do, and were ENTITLED to do, and that was focus on Simone.

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Elizabeth August 20, 2008 at 11:57 pm

This brought tears to my eyes. I appreciate so much your words, your honesty, your writing.

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Emily August 21, 2008 at 12:01 am

Alexa,

My heart is aching.

There are no nice, neat rules of engagement surrounding birth or death or life or hope upside down.

Thank you. Thank you for trusting us with this.

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topcat August 21, 2008 at 1:23 am

Goodness, Alexa …. like you have been in a whirlwind. You were most likely bunkered down in survival mode, having to focus every remaining ounce of love and energy toward your living baby. No rulebook for this … no right, or wrong.

Bravo, to you … for writing with such a piercing honesty. That is where the healing lives.

I always read and don’t often comment … but these past few posts have taken my breath away. I remember, once, you wrote about how precarious Simones health was that day, back in the NICU. And you said, if she had died, you would take her and be with her in a cave, until you died too.

She didn’t, so you didn’t. But by God, you have had a massive amount to deal with.

Love to you. xoxox

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Coral August 21, 2008 at 1:35 am

I am so so sorry.

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Annalien August 21, 2008 at 2:55 am

Thank you for sharing this with us. I wish I had some words of wisdom to give, but I have none. I think you are a strong and amazing woman who have been through so much. I am so thankful that you have Simone.

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Hairy Farmer Family August 21, 2008 at 3:02 am

Sat desperately searching for some words that might afford you some comfort in your grief for your beloved son, and failing. I have nothing clever to say, only tears to cry for you.

I feel that other commenters are quite correct, though: however you choose to mourn your son is the right way forward for you. It may likely be a process that takes you a long length of time. I cannot see a reason for you to feel guilty just because you did not reach a zenith of grief at what you felt to be the appropriate time.

Again, I am so very, very sorry for your loss.

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twangypearl August 21, 2008 at 3:09 am

Beautifully written, well done. I applaud your honesty, as ever.

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Rebecca August 21, 2008 at 4:03 am

You’re so brave for writing this, I think.

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Veronica August 21, 2008 at 5:19 am

I keep writing comments and then deleting them because nothing feels quite right. Thankyou for sharing.

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Aurelia August 21, 2008 at 5:23 am

I’ve been reading all this and crying for you. you really are doing the best you can. through birth and death, you are doing amazingly well.

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BrooklynGirl August 21, 2008 at 6:09 am

You are a remarkable woman.

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B August 21, 2008 at 6:10 am

We lost our daughter’s twin and I feel I never felt sad enough. We’ve rejoiced in her life and are so happy to have one child I do feel guilty I didn’t mourn enough.

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Shelli August 21, 2008 at 7:12 am

There is no right and wrong when it comes to grieving. You did what you could, and there is no harm in how you ultimately get though it.

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Heather August 21, 2008 at 7:26 am

The description of how you would have felt at losing Ames had he been a singleton… It’s like you took the words directly from my heart. Another beautiful post, and I don’t think you can ever feel guilty. You did the right thing. Simone was right there, alive and needing your love and attention. Depending on what you believe, Ames was past caring either because he was no longer aware or because he was in a much better place, so you have done him no disservice.

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Meg August 21, 2008 at 7:41 am

A beautiful, beautiful honest post, Alexa. Thank you.

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Losh August 21, 2008 at 7:45 am

This was an amazingly brave and honest post and I too, thank you for sharing your heartbreaking experience. I am so sorry that Ames didn’t make it, but so happy for you that Simone did. May you all be blessed with happiness and peace. Losh, x

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R August 21, 2008 at 7:46 am

what you were feeling sounds very human and very natural. Certainly Ames deserved to be mourned (and there is, of course, no one right way to do that), but Simone needed you to be the focused, thankful mother that you were.

I truly admire your honesty and openness. Thank you for letting us in.

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Sharon August 21, 2008 at 7:58 am

I’m often touched by emotional posts, but until now have never actually cried while reading one. You are an amazing, eloquent writer and, clearly, a woman of great strength. I don’t think I have your fortitude and can only be immensely grateful that my kids cooperated with the prescribed nine-month timetable for gestation. Of course, they’re not very cooperative these days. But then, they’re teenagers and I think not cooperating is their job right now.

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tash August 21, 2008 at 8:02 am

(HOLY GOD! Watch that flame! It could light the whole place on fire! BE CAREFUL! Watch your step, for pete’s sake! Those stairs are SLIPPERY! — just practicing for my anxiety event.)

This is just beautiful. There is no wrong, and eventually, I hope, no guilt. There just is. And hopefully you’ll come to live and breathe through what happened, and realize you did everything as it should have been done — photos, holding him, writing about him — exactly right. For you. Grief is very egocentric, it’s all about you and what’s best for you, and how you feel? Is how you feel. Everyone else can go hang.

This has got to be one of life’s most contrary of moments emotionally, and no one can judge how you would move through it until you have. You did with grace and humor and grit, which is more than I could possibly say about a lot of people moving through less.

Thinking of Ames today. And all of you.

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kim August 21, 2008 at 8:18 am

if only i knew that I was not alone when we lost our Jonathan and cheered on our Lewis (please do not feel guilty here). the story takes me back to the birthday of my two sons and, Alexa, I’m right there with you on the day of Ames and Simone’s birth, I only wish I could have given some comfort.

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amanda August 21, 2008 at 8:30 am

i have no words. just appreciation for your honesty and intense amazement at everything you have endured. i keep reading these stories and keep looking over at simone’s photos and marveling. she is so beautiful and i am so lucky to have been allowed to know her story, and that of her brother.

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Ellen August 21, 2008 at 8:41 am

thank you, Alexa. I think you give words to the wordless.

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All Adither August 21, 2008 at 8:44 am

I hope you realize what an amazing and powerful writer you are. I also hope that in writing this you’re able to more fully process your emotions.

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Jen August 21, 2008 at 8:45 am

Thank you for your honesty in this. What a wonderful mommy you are to have allowed yourself mere moments of grief and to immediately focus on Simone who needed you so much more. Ames would have understood. Simone will always appreciate it.

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MsPrufrock August 21, 2008 at 8:50 am

Oh Alexa. I feel like such a voyeur reading these two posts; the pain is so raw. No shit, I know.

I’m sorry.

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Lawyerish August 21, 2008 at 8:54 am

This was an amazing piece, thank you for sharing so much with us. You are wonderful and beautiful, and I am so glad that you and Simone have each other.

(And at the neurotic Olympics, as people panic and race for the exits, I’ll be standing in the middle of it all hyperventilating, wholly convinced that somehow *I* caused the chaos and that I will end up penniless and alone, shunned by society.)

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Jennifer August 21, 2008 at 9:15 am

These posts of your memories are so very moving. I just see you opening your entire soul to us right now. It must have been hard to be so torn between the loss of Ames and the focus on Simone’s survival. Perhaps Simone in some ways was your savior as she needed so much from you that you had to move through your grief with Ames quicker than you would have normally.

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Paula August 21, 2008 at 9:37 am

Though we are all different, we are the same. Many of us that read you have found you through the common ground of infertility. We have all lost so much. I can’t begin to tell you how much your sharing has meant to me. My gift of expression is far less than yours but you express my feelings of loss completely.

Thank you.

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Maura August 21, 2008 at 9:39 am

Thank you for sharing this with us. There have been, and sadly will be, other women who have had to deal with the pain of losing a twin. I’m sure your writing will bring them comfort and ease their guilt about celebrating the surviving child. I hope that this brings you some relief as well. You are in my thoughts this week.

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Mrs. Spit August 21, 2008 at 9:57 am

I am obsessive about what photo’s of Gabriel others see. I want them to see him as a lovely, tiny perfect babe, not a bruised, frail and feeble alien.

All of our photo’s are black and white, and the one displayed only shows his tiny face.

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meanmama August 21, 2008 at 10:21 am

We all process experiences and feelings differently. We are all unique. You have done nothing to warrant guilt. (I know that doesn’t stop you from feeling it, though.) You joy and optimism around Simone’s birth and growth in the NICU helped me through a very rough time, and I will be forever grateful to you for sharing that with the world.

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GG August 21, 2008 at 10:21 am

I have been reading your website for quite a while but have never posted a comment. This post definitely deserves it. I am so sorry for your loss but so happy for your blessing, Simone.

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Liz August 21, 2008 at 10:24 am

These posts are just amazing–I can’t believe that you apologized for them before you posted. I had a preemie and can relate to much of Simone’s battle, but your conveyance of the emotion surrounding Ames’ death is just raw and riveting–we are right there with you. Bless you…

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scribblette August 21, 2008 at 10:52 am

reading through my tears…feeling for you, and with you, all the way.

when effie was brought to me she was wrapped in a small blanket and the nurse had placed her head on a — no shit about this — prairie-style bonnet because her head was too soft to take the pressure of a knitted cap. but the bonnet, with its hideous edge of lace, made her look some kind of alien. i immediately lifted her out of the blanket and away from that horrific headpiece and held her naked on my lap.

two years later when mae was stillborn, i felt — i still often feel — that i grieved inadequately. but you’re right that a living child who needs you can enclose you in an entirely different set of emotions. and it can be very, very difficult not to feel guilty about that.

thank you for opening up about all of this, alexa.

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Ashley August 21, 2008 at 10:53 am

What a beautiful post. Your honesty and strength is amazing. Thank you for sharing so much of yourself with us.

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Sundry August 21, 2008 at 11:04 am

Beautiful post, beautiful writer.

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Becky August 21, 2008 at 11:12 am

*hugs*

Words fail me.

*hugs*

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Laura August 21, 2008 at 11:20 am

Love is often triaged in times of great stress – there’s no need for guilt, but you knew that anyway. Thank you for your honesty.

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electriclady August 21, 2008 at 11:21 am

There is no right and wrong way to grieve or to remember Ames. There is only what you need–and you needed to be fully Simone’s mama.

Thank you for being so honest. I know you’re not doing it for us, but for yourself–but thank you anyway.

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