Part Two.
I have started several posts about Ames in the past month, but have finished none of them. Every night for the last week I have rearranged sentences in my head before falling asleep, trying to find some way to talk about him, and I am foiled again and again by how complicated it all seems, and how tired it makes me to try to tease any order from my thoughts. And the longer I let it go, the more there is to say, and thus the more daunting the task of saying it becomes. The talented Tash wrote a post in which she quoted Amy Bloom: “Everyone has two memories. The one you can tell and the one that is stuck to the underside of that, the dark, tarry smear of what happened.”
I switched psychiatrists recently, and during the obligatory first appointment evaluation, he asked whether I ever feel guilty about anything, and I laughed. Not a tight, sarcastic laugh, but the laughter of the genuinely amused. If there were an Olympics for neurotics (and just imagine the opening ceremonies—the narcissists fighting over the torch, the claustrophobics streaming for the exits), I have no doubt that I would be a medal contender in that category. Sure, anxiety is my specialty, my meat-and-potatoes, but everyone needs a hobby, and guilt is mine. I sometimes read the stories of other women who have had stillbirths or lost a twin, and after sympathy, guilt is my primary reaction, because I should have been where they were, and I wasn’t.
I was devastated when Ames died, but more than that, I was scared. Simone was still in what felt like a uterine death chamber, and when my cervix began to soften, my contractions to increase, the equally terrible possibility that she wouldn’t remain there until viability reared up before me. Within a few days after the no-heartbeat ultrasound, all of my focus had shifted to keeping my remaining baby alive. They say people form strong bonds in times of stress, and after learning Ames was dead I felt closer to Simone than I had to either of the babies before that point.
You know what happens next. Bedrest, bedrest, and more bedrest. A hospital stay, labor, and my eventual C-section. And after it was all over I was giddy with accomplishment, and an amazed, joyful love. I had a BABY, I kept thinking over and over to myself.
They brought Ames to me in recovery, dressed in a pale blue outfit with a hood, a sort of cloak. I would have preferred him wearing nothing at all, as the contrast between his body—marinated for a month after death—and the frou-frou gown was grotesque, like a macabre Little Red Riding Hood. I was on morphine, high from the exhilaration of birth, the long siege over, and all I could think, looking at Ames in his blue hood, was that he looked like Skeletor. Scott held him and cried and I sat staring into his tiny face, wondering what was wrong with me.
With a stillborn baby, you get only one concrete physical image, and it is the image of a corpse. There was beauty, even so: Ames’ perfectly formed feet and long-fingered hands. Still, I could never understand the insistence upon regarding his body a month after death—a time when none of us would be at our best—as essentially him. I could feel Ames stomping inside of me when he was alive, I saw him kick and twist and wiggle on the ultrasound screen. He was not his corpse. Some relatives wanted pictures to display, and this bothered me more than I can express to you. It was not how I wanted him remembered, and I considered his appearance at birth to be private. He still felt very much a part of me, and one of which I was protective. No one else got to know him as he was before he died? Tough. This is an unfortunate fact of biology—I don’t make the rules.
I decided I wanted to see him again, and so the next day we were to say goodbye and send him to be autopsied. There was some confusion about when he’d be brought to my room, and a long wait, and then a nurse (insistent on giving me my 5:00 laxative and changing my bag of fluids) bursting in while we held him. I had arranged for a visit from Now I Lay Me Down to Sleep, an organization that takes photos of stillborn babies for their families. Ames was naked, fragile and softening. Because of how much time had passed since his death, he weighed only a little more than half a pound, and his skin was a nut brown. I had come down from my post birth high enough to register emotion, and finally, I cried. My in-laws came in to see him, briefly. And then it was just the three of us.
I held him, touched him—we had to be very careful—and gave him a kiss. I think I sang him a song. Scott thought he would have looked like me, that he had my chin. We could see so clearly who he might have been, something I search fruitlessly for in the pictures we have from that day. I gave him my middle name: Michel.
The worst part of the protocol is that the time you have is open-ended, and it is up to you to notify the nurse that you are “ready” for them to take your baby away. Ready! It feels like the worst kind of betrayal. We had a few false starts—I handed Ames to Scott to return to the bassinet, and then wailed for him back, sobbing. But eventually we did it, we wrapped him up and called the nurse, and he was gone.
If Ames had been a singleton, his death would have been the beginning of a fierce, consuming depression—this I know. Four years ago, after my miscarriage at seven weeks, I cried every day for months, quit my job, gained fifteen pounds, and obsessively tracked where I would have been in an alternate universe where that baby had lived. I can only imagine how incapacitated I would have been by a loss at the cusp of viability. But as Ames was wheeled to the morgue, Simone was very much alive, having perfusion problems from blood draws and dobutamine, and there was talk that day of her losing her hand or a finger. I was focused on learning to pump, and re-learning to walk so that they would let me go to the NICU. If Ames had been a singleton I would have been alone with my husband as my still baby was rolled away down the hall, my leaking breasts a mockery, my head empty and black inside. IF Ames had been a singleton.
But he wasn’t. And instead of mourning him as he no doubt deserved to be mourned, I gave him little thought in the coming months while I sat at Simone’s bedside, feeling judged and annoyed by those who insisted upon talking about him, and too guilty about my lack of mourning to post about him here. In case you imagined I was grieving him in secret, let me be clear: I wasn’t. First my fear and later my happiness left room for nothing else. If I thought of Ames at all it was in shame; it seemed unfair that others had to endure the crushing grief of a late-term loss, and instead I had somehow snatched Simone from the snappy jaws of fate and skipped neatly over the sorrow with my name on it.





77 Comments
I am so sorry. I sit here reading and crying. I cannot imagine what you have gone through. **hugs**
This is both sad and beautiful in its own way, just like Ames.
There is no right or wrong about it. Thank you again for sharing your story.
Alexa, this was your best, most elegant, most honest and moving writing yet. Mourning or no, now or later or never, this honors Ames’ memory.
I have no words. I just know that made me cry.
There should be no guilt for your feelings… I know 2 people who have lost a twin, and both have put their heart and souls and all their focus on the one that is very much alive. If you did not do that, it would have been too much, how could you deal with all of that on top of all the worry, fear and decisions that you had to make regarding Simone????
My best friend regards that open-ended amount of time the same way, it was so horrible to decide when to send her daughter and then not a year later, her son away (both singleton births). I can’t even FATHOM the pain, I only know of the pain of being on the outside looking in and wishing there was something I could do or something I could say that would help… but the words dont exist.
I am – selfishly – glad you’re writing about this. Not that any of us deserve to know any more about the bloggers we read than they desire to give us, but I’ve been wondering about this stuff. Your writing is amazing.
I cried for you and Ames. For what might have been. And smiled that you had a baby girl to take care of.
Words fail. Sending good thoughts out into the universe for you.
Your ability to so eloquently say what you must, and your honesty in doing so, is both breathtaking and beautiful.
Who says grieving and mourning has to be a certain length of time? You obviously DID mourn Ames, after learning he’d died in utero, and after he and Simone were delivered when you got to say your goodbyes. You did what you had to do, and were ENTITLED to do, and that was focus on Simone.
This brought tears to my eyes. I appreciate so much your words, your honesty, your writing.
Alexa,
My heart is aching.
There are no nice, neat rules of engagement surrounding birth or death or life or hope upside down.
Thank you. Thank you for trusting us with this.
Goodness, Alexa …. like you have been in a whirlwind. You were most likely bunkered down in survival mode, having to focus every remaining ounce of love and energy toward your living baby. No rulebook for this … no right, or wrong.
Bravo, to you … for writing with such a piercing honesty. That is where the healing lives.
I always read and don’t often comment … but these past few posts have taken my breath away. I remember, once, you wrote about how precarious Simones health was that day, back in the NICU. And you said, if she had died, you would take her and be with her in a cave, until you died too.
She didn’t, so you didn’t. But by God, you have had a massive amount to deal with.
Love to you. xoxox
I am so so sorry.
Thank you for sharing this with us. I wish I had some words of wisdom to give, but I have none. I think you are a strong and amazing woman who have been through so much. I am so thankful that you have Simone.
Sat desperately searching for some words that might afford you some comfort in your grief for your beloved son, and failing. I have nothing clever to say, only tears to cry for you.
I feel that other commenters are quite correct, though: however you choose to mourn your son is the right way forward for you. It may likely be a process that takes you a long length of time. I cannot see a reason for you to feel guilty just because you did not reach a zenith of grief at what you felt to be the appropriate time.
Again, I am so very, very sorry for your loss.
Beautifully written, well done. I applaud your honesty, as ever.
You’re so brave for writing this, I think.
I keep writing comments and then deleting them because nothing feels quite right. Thankyou for sharing.
I’ve been reading all this and crying for you. you really are doing the best you can. through birth and death, you are doing amazingly well.
You are a remarkable woman.
We lost our daughter’s twin and I feel I never felt sad enough. We’ve rejoiced in her life and are so happy to have one child I do feel guilty I didn’t mourn enough.
There is no right and wrong when it comes to grieving. You did what you could, and there is no harm in how you ultimately get though it.
The description of how you would have felt at losing Ames had he been a singleton… It’s like you took the words directly from my heart. Another beautiful post, and I don’t think you can ever feel guilty. You did the right thing. Simone was right there, alive and needing your love and attention. Depending on what you believe, Ames was past caring either because he was no longer aware or because he was in a much better place, so you have done him no disservice.
A beautiful, beautiful honest post, Alexa. Thank you.
This was an amazingly brave and honest post and I too, thank you for sharing your heartbreaking experience. I am so sorry that Ames didn’t make it, but so happy for you that Simone did. May you all be blessed with happiness and peace. Losh, x
what you were feeling sounds very human and very natural. Certainly Ames deserved to be mourned (and there is, of course, no one right way to do that), but Simone needed you to be the focused, thankful mother that you were.
I truly admire your honesty and openness. Thank you for letting us in.
I’m often touched by emotional posts, but until now have never actually cried while reading one. You are an amazing, eloquent writer and, clearly, a woman of great strength. I don’t think I have your fortitude and can only be immensely grateful that my kids cooperated with the prescribed nine-month timetable for gestation. Of course, they’re not very cooperative these days. But then, they’re teenagers and I think not cooperating is their job right now.
(HOLY GOD! Watch that flame! It could light the whole place on fire! BE CAREFUL! Watch your step, for pete’s sake! Those stairs are SLIPPERY! — just practicing for my anxiety event.)
This is just beautiful. There is no wrong, and eventually, I hope, no guilt. There just is. And hopefully you’ll come to live and breathe through what happened, and realize you did everything as it should have been done — photos, holding him, writing about him — exactly right. For you. Grief is very egocentric, it’s all about you and what’s best for you, and how you feel? Is how you feel. Everyone else can go hang.
This has got to be one of life’s most contrary of moments emotionally, and no one can judge how you would move through it until you have. You did with grace and humor and grit, which is more than I could possibly say about a lot of people moving through less.
Thinking of Ames today. And all of you.
if only i knew that I was not alone when we lost our Jonathan and cheered on our Lewis (please do not feel guilty here). the story takes me back to the birthday of my two sons and, Alexa, I’m right there with you on the day of Ames and Simone’s birth, I only wish I could have given some comfort.
i have no words. just appreciation for your honesty and intense amazement at everything you have endured. i keep reading these stories and keep looking over at simone’s photos and marveling. she is so beautiful and i am so lucky to have been allowed to know her story, and that of her brother.
thank you, Alexa. I think you give words to the wordless.
I hope you realize what an amazing and powerful writer you are. I also hope that in writing this you’re able to more fully process your emotions.
Thank you for your honesty in this. What a wonderful mommy you are to have allowed yourself mere moments of grief and to immediately focus on Simone who needed you so much more. Ames would have understood. Simone will always appreciate it.
Oh Alexa. I feel like such a voyeur reading these two posts; the pain is so raw. No shit, I know.
I’m sorry.
This was an amazing piece, thank you for sharing so much with us. You are wonderful and beautiful, and I am so glad that you and Simone have each other.
(And at the neurotic Olympics, as people panic and race for the exits, I’ll be standing in the middle of it all hyperventilating, wholly convinced that somehow *I* caused the chaos and that I will end up penniless and alone, shunned by society.)
These posts of your memories are so very moving. I just see you opening your entire soul to us right now. It must have been hard to be so torn between the loss of Ames and the focus on Simone’s survival. Perhaps Simone in some ways was your savior as she needed so much from you that you had to move through your grief with Ames quicker than you would have normally.
Though we are all different, we are the same. Many of us that read you have found you through the common ground of infertility. We have all lost so much. I can’t begin to tell you how much your sharing has meant to me. My gift of expression is far less than yours but you express my feelings of loss completely.
Thank you.
Thank you for sharing this with us. There have been, and sadly will be, other women who have had to deal with the pain of losing a twin. I’m sure your writing will bring them comfort and ease their guilt about celebrating the surviving child. I hope that this brings you some relief as well. You are in my thoughts this week.
I am obsessive about what photo’s of Gabriel others see. I want them to see him as a lovely, tiny perfect babe, not a bruised, frail and feeble alien.
All of our photo’s are black and white, and the one displayed only shows his tiny face.
We all process experiences and feelings differently. We are all unique. You have done nothing to warrant guilt. (I know that doesn’t stop you from feeling it, though.) You joy and optimism around Simone’s birth and growth in the NICU helped me through a very rough time, and I will be forever grateful to you for sharing that with the world.
I have been reading your website for quite a while but have never posted a comment. This post definitely deserves it. I am so sorry for your loss but so happy for your blessing, Simone.
These posts are just amazing–I can’t believe that you apologized for them before you posted. I had a preemie and can relate to much of Simone’s battle, but your conveyance of the emotion surrounding Ames’ death is just raw and riveting–we are right there with you. Bless you…
reading through my tears…feeling for you, and with you, all the way.
when effie was brought to me she was wrapped in a small blanket and the nurse had placed her head on a — no shit about this — prairie-style bonnet because her head was too soft to take the pressure of a knitted cap. but the bonnet, with its hideous edge of lace, made her look some kind of alien. i immediately lifted her out of the blanket and away from that horrific headpiece and held her naked on my lap.
two years later when mae was stillborn, i felt — i still often feel — that i grieved inadequately. but you’re right that a living child who needs you can enclose you in an entirely different set of emotions. and it can be very, very difficult not to feel guilty about that.
thank you for opening up about all of this, alexa.
What a beautiful post. Your honesty and strength is amazing. Thank you for sharing so much of yourself with us.
Beautiful post, beautiful writer.
*hugs*
Words fail me.
*hugs*
Love is often triaged in times of great stress – there’s no need for guilt, but you knew that anyway. Thank you for your honesty.
There is no right and wrong way to grieve or to remember Ames. There is only what you need–and you needed to be fully Simone’s mama.
Thank you for being so honest. I know you’re not doing it for us, but for yourself–but thank you anyway.
There is no right or wrong when it comes to grief and “how you did it”. It is what it is. As far as guilt, I think that is a part of motherhood, for better or worse. Maybe it keeps us on our toes to do “better”. I will say that 8 years later, I feel guilty that I don’t spend more time at the cemetary, but it feels weird to me. The baby section can be seen from the street and talking to her seems silly because she can’t hear me. So I don’t go and feel guilty about what kind of mother I am. Ain’t it fun?
Alexa, I totally understand how you feel but at the same time, you HAD to focus on Simone. Your neurotic brain knew it needed to rewire itself to get through that time. You had a very premature, living twin that was frail and deserved 100% of your attention. If you had actively grieved Ames every moment, and slipped into depression, that would have been tragic for all of you. Don’t feel guilty for surviving – that is what you did.
I can’t imagine how hard it is for you to try to put this into words. If only there were a set of rules for grieving, maybe loss would be a tad bit easier. Since there isn’t, never feeling guilty about how and when you grieve for Ames. He was loved and is greatly missed. There is no doubt about that.
Brava dear one, brava… Just know that your words are helping someone, somewhere. They must.
You write with such honesty and strength, I am speechless. I wish you had never experienced such pain.
Wow, you have done it again, you have reached into my brain and written down my feelings so amazingly. Thank you for doing so. We lost one twin at 22 weeks but I had the other to focus on so I did not feel the same intense mourning either. I feel blessed that one boy survived, however, I should feel devestated that one boy died. Instead I feel horribly guilty for not feeling the right thing.
You have said this so beautifully. I have tears streaming down my face. What really gets me isn’t Ames’ death–though that’s what started the tears–but the honesty with which you speak of the days and weeks after.
How much we love shouldn’t be measured by how much we grieve.
exquisite.
Dear Alexa,
Just dear Alexa. I don’t know what else to say, except that I am all ahum with emotion for you.
Alexa,
I have lost 2 sons, both born alive and full term. The first was a singleton. The 2nd was my daughter’s twin brother. The way you described the experience of holding him after he dies and thinking that it wasn’t really him, of saying goodbye,even how you described if he ahd been a singleton (the leaking breasts, head black inside) was well, god, just perfect. It is very rare that I read something that resonates deeply with my own experience. thank you. It’s been 3 1/2 years since my first passed, and 2 years since my 2nd and I’m still learning to deal with the pain. It’s a long journey and I will think of you often as you travel through it.
amy
I can’t imagine.
I am one of those guilt type people myself, I am still trying to process the loss of my daughters twin. I do think of myself as lucky it was early in the Pregnancy. I can’t imagine going through what you had to.
Take care.
Dear Alexa…another stranger here to offer you my deepest sympathy to you and your husband for all you have endured from losing Ames and the harrowing begining of Simone’s life. How can one mind process so much mixed emotion- elation, grief, hope, fear? It can all be too much to bear.
Thank-you for letting us into your private life,(written w/ breathtaking style,) and for your example off fortitude.
wow, that was so amazingly brave and honest.
Crying for you…
Sending love.
You suffered a simply heartbreaking loss at a time when you just didn’t have the ability to process it. You DID grieve for Ames in the best possible way – by devoting yourself to his sister.
We suffered the same juxtoposition of emotion when we lost our little boy while our girl thrived in the NICU. It was/is impossible to sort out “what is right” or “what you should be doing” in such a situation. There are no protocols, no guidebooks. You do what you and your family need to do and know it is your best. Please try not to look back and feel guilty. Thank you for sharing.
Ok so first I’m laughing a bit (a lot) on the idea of an Olympics for neurotics. I too would be a medal contender in there somewhere. Guilt I think is an emotion that women feel for reasons I will never understand.
This is a beautiful post. I’m sorry for your loss but totally can understand how your focus was Simone throughout all of it. Thanks for sharing this.
Thank you for sharing this experience with us. My feeling when reading this post is that your grief and your mourning of your son was (and is) real and present, but even that grief in its deepest, darkest, heaviest moments cannot succoumb to your maternal instincts. Your son had passed. Yet, your daughter needed you. As a mother, on every level of your being, you knew she needed you right then. I can’t imagine what you went through with her in the NICU right after the loss of your son. I just imagine those maternal instincts drowning out anything in their path. Now that Simone is older and “wiser”, things have settled enough for you to take this breath and remember and feel the loss of Ames. We will all remember with you. Hugs to you and your family!
Thank you for writing this. Perhaps more than you know, you have captured a lot of the feelings that many of us have after a traumatic birth. When my son was born very very ill I had shock, and then I began plotting his recovery. I think that now, when he is a year old, I am finally enjoying him. Of course, I feel guilty about this, but that is just the way it is.
Oh sweetheart, I always thought there were no words to adequately describe this loss but I really think you have found them. Thank you from the bottom of my heart for this opportunity to re-visit my losses and deal with them without the guilt I felt way back when. I sincerely hope that in the days, weeks, months and years to come you will think of Ames with a smile but no sinking feeling that you should have been able to keep him alive if only….
Another thought for you, as far as I can tell, motherhood is a never ending source of guilt of one sort or another. My ‘boys’ are now 29 and 24 and I STILL think ” did I do/say the right thing, should I have done/said/tried whatever?’ …. I’m sure you get the picture.
Simone is a very lucky little girl to have you and Scott for parents.
Alexa I can’t even see clearly to type. I’m sitting in the downstairs of my house, in private, so that I might read and mourn for you and your family in some peace and quiet.
Thank you for sharing, and remember, there is no right or wrong way to grieve, or not to grieve. Everyone moves at their own pace, whether consciously or subconsciously.
Ames was a wonderful baby, and I’m so happy you were able to know him.
One commenter said it better than I ever could: How much we love shouldn’t be measured by how much we grieve.
Beautiful post. I hope writing about Ames brings you comfort.
That was beautiful
Again, you are a brave woman. I’m glad to have found you.
Slackermama sent me and I’m so glad she did. You said something I needed to hear and although I can’t go into it, just know that your story made mine a little easier.
As usual, you sum up the grief one feels at taking care of the living baby while being unable to mourn the dead quite aptly. We couldn’t afford to stop and grieve Olivia the way that she deserved to be, and so the grief continues, 26 months later.
Pragmatism is a wonderful thing. When my fiancee lost his left arm up to the elbow in an industrial accident we were too busy trying to figure out how to cope with the problems that were right in front of us to indulge in self-pity.
Ben was alive. The smart, funny wonderful man I loved was walking next to me instead of lying in a box. It would have been nice if he still had two arms, but I was so grateful not to be a widow before I got a chance to be a wife that I didn’t brood about his sudden unfortunate shortage of appendages.
I, too, hated the counselor that the intensive care department inflicted on me. She used awful jargon about making lemonade from life’s lemons and she kept urging me to cry and talk about my feelings. Ben’s mother (who shares my evil sense of humor) eventually helped drive her away with a barrage of amputee jokes. She finally left us alone with a parting shot that we were seriously in denial and when grief finally hit us, as it was bound to do, we would be completely unequipped to deal with it.
Ben’s accident was 25 years ago and we are still waiting to be engulfed by grief.
This is much too long, so I’ll wrap it up and say that I love reading your blog. Simone is a beautiful baby and she has a terrific mom.
Yeah, complicated. In a way Ames gave you a gift of seeing more clearly what we should all see: the huge, improbably gift and blessing of each live baby. Thanks for your honesty and compassion.
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