Comments on: Dasein.

By: leslie

leslie — Tue, 16 Sep 2008 00:59:19 +0000

I notice Simone’s lack of foreign policy experience. Perhaps if she started wearing lipstick, she would be eligible to run for vice-president.

By: sam {temptingmama}

sam {temptingmama} — Sun, 14 Sep 2008 23:32:23 +0000

Those pictures of Simone are great! LOL

I can’t believe that the treatment was denied – completely unconscionable. Gah!
I’ll head over sign ASAP!

By: Pai

Pai — Sat, 13 Sep 2008 15:47:43 +0000

Awesome photos. =0)

Hey Ginger, mind if I ask which metabolic disorder? My daughter, age 10, has MCAD, diagnosed through random newborn screening, therfore actually helping to make expanded NBS mandatory in the state in which she was born. She’s been asymptomatic her whole life so far, thankfully!

Ooh, anyone want to play Count The Commas In Pai’s Post?

By: angela michelle

angela michelle — Fri, 12 Sep 2008 19:42:42 +0000

She looks quite studious (first pic) and contemplative (second). She is so wise to use this preverbal time to get her thoughts straight. When she does speak, she’ll spew things like “counterhegemonic” from the first.

By: Sharon

Sharon — Fri, 12 Sep 2008 09:17:12 +0000

No picture books for Simone, it’s straight onto the good stuff!

Simone’s behaviour in the ER is totally normal. That’s what babies do best – undermine their Mothers’ confidence by any means available.

Good luck with the EI people.

By: Diana

Diana — Thu, 11 Sep 2008 14:09:16 +0000

I found your blog and think it is wonderful and so well written. The pictures are adorable. Hope all goes well with the Early Intervention team.

By: Krista

Krista — Thu, 11 Sep 2008 03:46:44 +0000

hehe the pic with the book is adorable :) I’m so glad to see Ivy has been approved for the treatment

By: Melanie

Melanie — Thu, 11 Sep 2008 03:11:28 +0000

I just smile when I see those baby pictures….. gosh darn it when you think she cant get any cuter….she does! Aren’t those bumbo seats great! I swore I would never waste my money on one but after having a child with reflux, seemed like anything to get her sitting up sooner was a good idea.

By: Ginger

Ginger — Wed, 10 Sep 2008 22:38:51 +0000

Because I am such an awesome mom, my preemie girl got RSV within three weeks of entering day care, and I thought it meant asthma etc. for sure, because of the numbers of risk factors she had. We went back to the ped ER one year later for wheezing, got albuterol with an aerochamber spacer, and one of the steroid inhalers too, but we just don’t need much of either so we did all that worrying for nothing.

Moral of the story: try not to worry too much because the wheezing may not last.

Once I tell you about how my second child has a metabolic disorder from the newborn screening heel stick panel, and that I worry myself sick, you can tell me to shut up, since I don’t know the first thing about not worrying.

The Heidigger could cause wheezing, and nausea.

By: Amanda

Amanda — Wed, 10 Sep 2008 19:31:23 +0000

OMG! The petition already worked!!! Ivy has been approved for the IVIG treatment!!!! Hooray!!!!

I’m sorry about your trip with Simone to the ER. And to think that she’s so naughty as to not even show a single symptom while there (haha). She is such a beautiful little girl sitting there ready her big words!