Bottoms Up.
As those of you who follow me on Twitter may know, I visited a gastroenterologist last week. Aside from the humiliation of discussing my bowel movements with an attractive young man possessing NO appreciation for my command of the euphemism (“Could you be more specific?”) the appointment was fine. After the appointment, however, things took a turn for the worse.
A lab technician drew my blood, and then she informed me that I would need to provide a stool sample. Not right then, thankfully. I would produce and collect the sample at home, and then drop it off during business hours, as one does.
Now, look. I know this isn’t a particularly pleasant topic, but I am told that the only way to deal with trauma is to openly discuss it with others until the details lose their power to horrify. I am trying to heal, here, so you will just have to bear with me.
“You’ve collected stool before?” the technician said. It wasn’t really a question, and I took offense. Do I LOOK like the kind of girl who goes around collecting stool? Is this the impression I give, that of a frequent stool collector?
I answered icily that I had not, and then, to my horror, she produced a large bag full of collection supplies. I had assumed that there would be only a cup involved, but no! I would be collecting FIVE DIFFERENT SAMPLES.
“This goes on your toilet,” said the technician, revealing a large plastic hat into which I would be relieving myself. One of the samples was a swab, a large q-tip I was to run over my own excrement before retuning it to a sterile tube. Another two samples contained liquid to which I was to add precise amounts of…you know. And another two were cups that each needed to be “at least half full.” Depending upon your outlook, you could also say they could be nearly half empty.
The gastroenterologist is located only a mile from my husband’s office, a good twenty minutes from our home. It would have made no sense for me to drive out of my way to return the samples, so when Scott returned from work, I met him at the door with a request:
“I know this wasn’t specifically covered in our marriage vows,” I said, “but I need you to be my poo courier.”
I will draw a veil over what precisely ensued later that evening in my bathroom laboratory, except to say that I did my best, and I will never be the same again. I ran out of material before I got to the last jar, but I didn’t care. I left it empty. I decided I’d rather die of whatever disorder it was meant to test for than spend another moment with a fecal scoop.
Afterwards I washed my hands over and over again. I’d never actually touched anything pertinent, but still they felt dirty, and I kept leaping up to scrub them one last time.
“They don’t feel clean!” I whined, “I’m like Lady Macbeth, with feces!”
Scott explained that this simply made good evolutionary sense.
“If you weren’t disgusted by it you might eat it,” he explained, “and then you’d get sick and die.”
Thank you, Evolution. MESSAGE RECEIVED.
I don’t even want to talk about the fact that one of the samples had to be refrigerated. In fact, I never, ever want to speak of this again. It is a mark of my desperation that I willingly sought out a gastroenterologist—a specialty KNOWN to be overly eager to examine things that, unlike life, are best left un. To his credit, he is the first doctor who has displayed any interest in getting to the bottom of my symptoms, even if he took the bottom part rather too literally. His opinion was that I likely had celiac disease, a conclusion I’d begun to fear some time ago but had been fighting ever since, desperate to avoid a diagnosis that comes with a prohibition against pasta and tuna melts.
But my tests came back today, and I do not have celiac. Everything was fine, with the exception of a barely elevated CRP. The gastroenterologist offered an endoscopy and colonoscopy, but that seems excessive, even to me. I have some vague theories based on my positive clotting antibodies, the CRP, and my TSH being high (for me–2.5), but I’m not a doctor, I just play one late at night on search engines. I see an endocrinologist tomorrow, and then I am going to stop driving to far flung suburbs to be told that there are only small, nonspecific things the matter with me. I will conclude that this is simply my new normal. Markedly inferior to my old normal, but then so are my new breasts, memory, and skin elasticity. C’est la vie.





71 Comments
You are seriously so funny. I don’t think I have ever commented here before, but have been reading for a long time. I, too, have done the stool collecting and I LOVE your description…the lovely things we do for our health.
OMG OMG OMG.
God, this is hilarious.
Won’t you please have the colonoscopy anyway…so that you can write about it in a reassuringly funny way and make me feel better about the fact that I have to have one in the next year? Pleeeeeeeze?
p.s. If you think THAT was bad, a friend of mine had to collect samples in a bucket (yes, the same bucket used every time), over a period of DAYS, to rule out some esoteric disease they thought she might have.
I was reading along so seriously until I got to “nearly half empty” and then I just lost it … in a good way.
FWIW, I organized a group of faculty who study cost-effectiveness in medical decision making (really) and one of the reports they reviewed involved the 6th … yes, 6th … portion of the stool sample costing something like $20 million per life saved (or some ridiculously large amount). The point being that only if the first 5 were OK and the 6th wasn’t and you then had a treatable problem was #6 useful and that happened phenomenally rarely. Now presumably it’s LESS rare with #5, but I’m betting still pretty rare, so it sounds to me like what you provided should be … adequate. Er, plenty. Um, hope you learn something useful. And treatable. That involves eating lots of pasta and tuna melts.
I was courier for my husband in this same situation. It wasn’t in our marriage vows either. Perhaps we should start suggesting that people add that?
Bleargh. You would think after infertility you would get to keep at least one orifice undiscovered. I hope you feel better soon.
When I was having my kidneys checked regularly, I used to have to do 24-hr urine samples. The collection container looked like a gas can. And it was supposed to be refrigerated. I refused to store that “stuff” in my fridge. Instead, I bought a cooler specifically for my collections, and just made sure to keep refilling it with ice during the 24 hours.
Hi! I’ve been reading for a long time now and haven’t commented…so I’m delurking. I couldn’t help but add a comment on this. I don’t know what kind of problems or symptoms you have been having, but if your doctor wants you to get a colonoscopy please don’t delay. I just turned 30 and in August had my first colonoscopy. I had been having blood in my stool (hate that word!!) for maybe 6 months. It wasn’t there everytime I went, but I had been noticing it. Anyways, the doctor thought I probably just had irritable bowel syndrome, but since there was blood thought it should be checked out and scheduled me for a colonoscopy. I must admit he is a cutie and I was quite embarrassed to know that he would be down in that area. The worst part was definitely the preparation. I felt nothing during the procedure. However, I woke to find the cute doctor there telling me that they had found a large mass in my colon and I was scheduled for surgery the next day. I was terrified since I had never had surgery before, except for a minor procedure to remove a lump in my breast. Thankfully, the mass turned out to be benign and was removed along with a foot of my colon. I will never forget though the words of my surgeon. He said had the mass not been removed it would have been “cancer by christmas”. It was scary to think that had I not gone to have this done I would have colon cancer. I can’t imagine the thought of how things could have turned out very differently.
Like I said, I just wanted to add this comment. I don’t want to scare you or anyone else.
Sorry for rambling on…but I love your blog and think you are a great writer. I love reading your posts. I hope everything turns out okay for you!
you are hysterical. you’re the only blogger who could make poop harvesting funny. (i can barely pee in a cup, and wouldn’t be able to write anything even remotely interesting about it)
A good friend of mine went through something similar, with a lot of not taking her seriously. Ultimately she found a good endocrinologists office that specializing in obesity, which was nice since unexplained weight gain was also on her list. She also found out that she’s allergic to milk.
I see them now as well and I haven’t felt better (I also am on the horse pills for vitamin D, metformin, and a host of other things) the point being of course, that they are closer to your house than to mine, so if you’re not getting anywhere, let me know, I can give you the info. Not giving up is important.
Sorry about the poop. :(
I have celiac, and since you didn’t get an endoscopy, that means you probably were just tested via blood test? Did your doctors discuss with you have inaccurate the blood tests are and how often they are falsely negative? (Less often falsely positive, but still a good percentage.) I would go get an endoscopy if I were you. But a lot of that may stem from my desire for the entire world to go gluten free, and thereby make my life much much easier. :)
f’ing hysterical. I may have read parts aloud to my (squeamish) husband ;)
Thank you, thank you, for helping me to renew my vows tomorrow, on our seventh wedding anniversary, where I will promise to be my husband’s poo courier, if ever it’s needed; and hoping I will never need the same. My sympathies to you, the person whose writing is dear to my heart because you brought so many wonderful verses of “Little Bar of Soap” into my child’s life.
Oh I wish you were a little poo courier.
Oh I wish you were a little poo courier
I’d go poop in a plastic hat
and I’d ask you to courier that
Oh, I wish you were a little poo courier.
My doctor once…twice.. multiple times gave me a poop collection packet and ordered me to collect (and all i needed were swabs!)
i did not. Brava to you, brave soul. I give you full permission to feel superior to me as i slowly die of something butt-related, but at least i didn’t have to swab my poop. Its a fair trade, to me.
I have never before in my life cried with laughter while reading a blog post, but you have changed things for me, Alexa. You were my first. I am weeping.
I’m sorry you had to endure that! I have had ulcerative colitis since I was 15. I was diagnosed at 16 and was introduced to the “hat” and home collection. It is mortifying as an adult and about a million times more so as a teen.
I hope you can find something to change or fix that will help you feel better. Digestive issues are really tough to deal with on an ongoing basis.
We get $20 a month for stuffing our boys’ poop into three little test tubes each. It’s a juvenile diabetes study that’ll follow them until age 15. Right now we can scoop from their diapers, but that’s the one thing about potty training that will NOT be better.
http://teddy.epi.usf.edu/TEDDY/index.htm
It goes in a tube, in another tube, in a plastic bag, in an envelope, in a box with a BIOHAZARD sticker, in the outgoing mail pile at my workplace. Too bad you can’t just mail yours
Awesomesauce.
(Not referring to the sample. Referring to the above post.)
You’d think after changing diapers you’d merely roll up your sleeves, because, hey what’s a little poop? but no, personal fecal material is just… gack.
Anyway congrats on surviving the ordeal, and may I echo an earlier commenter in suggesting you also get the endoscopy, the “gold standard” for confirming or dismissing the presence of celicac disease. It’s not awful, plus: o the glorious drugs!
Out, Damned Spot! Out, I say!
Oh, I learned so much from this post. I wonder if “poo courier” is somewhere in the fine print on my marriage certificate. I’d better check.
I laughed aloud MULTIPLE times while reading this post, and it’s only 6:30 in the morning here, so that really says something.
An ex boyfriend of mine had to do this once, but they did not provide the collection “hat” to go over the toilet. We had to fashion a toilet out of a bucket and a plastic bag. Yes.
Hey. Alexa are we related? I just got my lab results back and my CRP is high. My hair is falling out in clumps, my TSH is off and I feel like shit! I have Rheumatoid Arthritis however, I did NOT have to collect samples of POO! Thank God! But I have worked in the lab for 20 years and I have had to explain that a billion times to patients. I do feel for you sweetie! But look, it came back good. And no one mistaked it for a chocolate fudge sundae! Woohoo! Hopefully now they can get to the bottom of the problem, get you medication and you will be feeling better.
Boo to the poo!
Honestly, being diagnosed with Celiac was the best day of my life. I spent years sick and being told I had ulcerative colitis and even put on steroids. I was still sick. Finally, I met an Irish doctor (I’m half-Irish) and he asked me if I’d ever heard of Celiac – it’s very common over there. So off I went to be poked and prodded from every orifice after years of being poked with no real relief – ha, ha. Honestly, I cried thinking of all the foods I missed but I was relieved to find out what was making me sick for so many years.
A couple of months after going gluten-free I felt like a new woman. One with energy! And the freedom to leave the house without the concern of sullying someone else’s bathroom! Less aches and pains, less depression, less anxiety.
All that said, I sincerely hope you don’t have Celiac but I just wanted to reassure you that it isn’t the worst diagnosis in the world. I’m a veritable trove of Celiac information so if you do get a positive diagnosis and need to bitch, vent, celebrate or locate recipes and yummy food, I’m your girl.
quite likely the most horrifying and hilarious blog post i’ve ever read! i seriously hope that you find some answers. this is NO fun!
I work in a lab where I see poo and urine go by all day. I always wondered what goes through people’s heads as they are collecting their “specimens.” Thank you for enlightening me! (I too wonder why doctors choose their specialties when they involve things like poo and pee. What made someone decide that?)
I don’t think they can test for celiac with a stool sample, and as someone mentioned above the blood test is really iffy (and pricey, at least where I live.)
I would strongly recommend going off all gluten for three months to see if it helps, I did it just to get my Mom to stop telling me I had celiac and she turned out to be right. I went from being tired and groggy all the time to actually FEELING energy. I can’t remember the last time I had energy! I don’t miss bread at all, it’s a really small price to pay to be able to get out of bed in the morning.
The hard part is actually eliminating all gluten, as even slipping occasionally means your intestines never heal and you won’t notice a difference.
As 8,11 and 26 discussed…
Please get the colonoscopy…for so many reasons.
In my earlier years I did a rotation through a gastroenterologist’s practice…have seen a scope done for celiacs and other issues. It is the best and most thorough way to just check things out.
I know it is difficult ‘dealing’ with that area…I just hate it though, when people are so embarrassed about something, that they don’t get proper diagnosis and treatment.
(This from someone who MUST schedule a colonoscopy and has been privately struggling with pp hemorrhoids big enough to…well, enough about me!)
At least you didn’t have to do a 72-hour fecal fat, which requires you do your bizness in a paint can (which AT LEAST has a lid, thank God for small blessing) for four days then bring it back.
::shudder::
I didn’t get the toilet hat either! I had to do ‘it’ on a paper plate. Then I had to mail (MAIL!) the little card back to the office. So weird.
At least my gastro guy had a sense of humor. When I asked him if I really had to mail (MAIL!) the poo card to him, he told me that yes I did, and if the office received 20 cards in one day, they all won free tickets to Six Flags. Ha!
So funny. I just had to collect three different samples of my son and that was gross enough. Glad its not celiac but I hope you get some answers soon.
I thought I was up to date in reading your posts, but I don’t remember what your symptoms are. As someone with IBS, diverticulitis and half a colon, I am interested. I, too, play a gastroenterologist by the glow of my monitor lat at night, and might be able to offer some suggestions on what to obsess about.
FWIW:
My husband had a colonoscopy last Friday. He said it wasn’t nearly as bad as he’d been led to believe–the prep wasn’t fun, exactly, but he’s not exactly new to the symptoms it makes you have (“Could you be more specific?” “Diarrhea.”)
Possibly more relevant: my middle son started having terrible, terrible problems with constipation and diarrhea, fatigue, crankiness, general malaise etc, starting about a year ago. He tested negative for celiac and a host of allergies and everything else, but couldn’t poop without total misery. It went on for months and months and was awful. It turned out–and the doctors didn’t figure this one out for themselves, it was me and the internet and my internet friends–that he has a gut allergy to dairy and soy. The skin test is not reliable for that, but every time he ate even trace amounts of dairy it inflamed his intestines to the point where… um… yeah. Anyway, after two days of no dairy I saw a marked difference. Several months later, I became a neurotic allergy mom and eliminated all the dairy and soy from his diet to the nth degree. He’s like a new kid. Seriously–much much much happier.
Maybe try it for a week? Gluten challenge I think is also a good idea, but that’s a three-month project if you do it right.
Oh my god, “I’m like Lady Macbeth, with feces!” I can’t stop giggling, but I’d better unless I want to explain to the person in the next cubicle what I’m laughing at. Which is tempting. Glad to hear nothing (major) is wrong, but hope you get to the bottom of it (ha) soon.
Ok, this explains the tweet!
Well, you know my issues, and although everyone on earth wanted to call it IBS, turns out that I had an infection called dientoemeba fragilis and if I took flagyl and and some other drugs, it went away, back to perfectly normal. Lots and lots of us get parasites and bacteria from food poisoning and just everyday life, and doctors call it IBS, but it isn’t always that.
Turns out that it passes easily between kids and adults and some adults are carriers with no symptoms, but they need to be treated too, or everyone gets it over and over and over again.
The other bad thing? I got news for you. You only did one sample, divvying it into 5 doesn’t count. And in adults, you need to submit a minimum of three samples, and 5 are better, taken over several days. In adults, the amoebas are regularly missed. They die and become undetectable within 15 minutes of leaving the body. They have to be preserved in fixative to be seen.
So ask if you can do more, if there is no answer. You really don’t have to suffer! And what if the baby catches it from you?
And yes, my colonoscopy was no fun, but I can email you the instructions for the easy prep and you can ask your doctor for the good drugs, no midazolam, just profolol.
Better than actually having a polyp or other treatable condition.
P.S. my gastroenterologist says the modern blood tests for celiac are very accurate. The old one wasn’t. So you might be fine on the count.
P.P.S. still think that when your vitamin D levels go up, you will feel much better. Low D will mess up your thyroid, as well as make you feel crummy.
Oh Alexa! You’re so hilarious! Happy you don’t have any diseases, strangely sad that you’re not getting anymore ahem, EXAMS so we can hear about those, too.
Lots of love from the Canadian contingent up here in Montréal!
This was pretty hilarious! One time I had to collect poop, too, and I had to deliver it to the hospital during business hours, 1 hour after it was collected. One 3 different days. I think I used the Friday after Thanksgiving and some Saturday mornings. Who comes up with these systems?
Glad someone is listening to you about the symptoms, though.
I think I may have PTSD from reading your post! I am horrified!!! Well – I guess you have proven the point that you can’t really die from embarrassment!
I had to do that once. Not cups but smears on a special paper that was then MAILED through the USPS to the lab. This was years ago before the mail was closely monitored for anthrax. I like to think my chemical warfare was just as dangerous.
You had me doing the silent laugh. Near hysteria, really, but as I have a napping babe nearby, I had to reign it in. So, I guess you weren’t really THAT funny, then, if I could still control it.
But funny nonetheless. I am particularly fond of the description of the icy retort to the lab tech. Wonder what she thinks when people reply, “oh, yup, sure, all the time!”?
I am dead from a lethal combination of funny and gross.
Hi Alexa,
You should know that there is a really high false-negative for celiac disease blood testing. They also need to test you IGA levels, because low IGA = possible false negative. I woudl recommend the biopsy/endoscopy and/or a gluten-free diret trials for a month.
Celiac is asociated with so many systemic illnesses and symptoms (fatigue, rashes, depression, teeth problems, thyroid problems, frequent illness, infterility, increased risk of bowel cancer in addition to the expected GI problems)that it is really important to completely rule it out.
That was funny shit (haha… get it?)
Glad you are mostly okay? :)
I know that liquid-filled tube! At least you had available poo from which to “sample.” When my infant daughter had bloody, mucousy diarrhea, they asked me to take a sample to test for rotovirus. The stupid scoop thing kept getting caught in the mesh of the super-absorbent diaper, and I went through about six diapers before I got that damn liquid to move. One of my clearest memories of motherhood will forever be standing in my bathroom at 3:00am, my face an inch from the diaper, searching for solid specks of poop.
CRP? isn’t there a letter missing? Like an A between the R and the P?
I had a weird disease one time where my poo came out white. I hoped it was an indication of sainthood, but the doctors said no.
I’ve had gastrointestinal issues for years. Even went through a round of tests to figure it out (I didn’t have to do the “experiments” myself, but you try going into a specimen cup, I think you might have had it better. And twice, I had to refrigerate said sample in my WORK fridge. (in an inconspicous brown paper bag, thank goodness. Hope nobody tried to steal my sandwich).
I had the colonoscopy, as long as they sedate you, it’s not so bad.
Sigh. I can totally relate! My 5-year-old has been having ‘issues’ and I had to collect the dreaded ’swabs’ THREE DAYS IN A ROW! It was…indescribable. And yes, even after hours of handwashing I still felt dirty. We shall not speak of this again.
Okay, so really, not so anonymous, but I will tell you the most frightening thing I have ever done in my life is attempt to assist my mother, while doubled over in pain from not *ahem* going in days, give herself an enema. While I recoiled at your story, I remembered this one, and thought, eh, not so bad. At least you didn’t see your mother’s bizniz. Now I’ma go take a nice little happy pill and finish off my wine.
There’s a blood test for coeliac disease. Actually, there’s several, if you wanted to be really sure.
Does the gastroenterologist have anything against you? :)
g
Oh good, I’m seeing a gastroenterologist next week. Now I know what I have to look forward to – thanks!
Hilarious.
For me a stool must always be something I sit on, preferably in close proximity to a drink.
I hear ya re the hand-washing afterward. What might make you feel better is a bath in hand sanitizer gel or pure rubbing alcohol.
Oh, please do get a colonoscopy if your doctor suggests it – I say this on behalf of my father, who had colon cancer.
I dread the day that I have to scoop my excrement into cups. Even more so, I dread the idea of placing one of the in.my.fridge. OH MY GAWSH. (please channel Janice from Friends when reading that.)
Been there, done that, too. Excellent humerous description of one of the most humiliating things I’ve had to do. Best of luck to you.
Ah, yes, this reminds me: Being the youngest person in a proctologists waiting room? Check…from the long list of stuff I never expected but had to endure anyway.
Best of luck- I’m hoping you get to keep tuna melts.
I hope the endo has some helpful solutons to offer. While your TSH is technically in the ‘normal’ range, it’s on the higher end of normal and that could be enough to make you feel like shit (no pun intended). I believe I read the ideal range for TSH is 1.0 to 2.0.
On a different note, I’ve read a few other comments suggesting you give a gluten-free diet a try. I’m no expert at all, but that same thought occurred to me… or at least thoughts about a diet of reduced refined carbs. When you posted about your vitamin D issues a while ago, I thought back to previous posts on PCOS, insulin resistance, and your love of pasta and wondered if refined carbs were part of the problem. I know the thought of giving up these yummy foods sounds awful. I LOVE pasta and bread myself, but I gave up refined carbs a few years ago and it turned out to be easier than I thought it would be. I found I liked feeling better more than I liked the pasta and white bread. I still fall off the wagon and eat stuff that’s bad for me, but when I do I try to keep it to things like dark chocolate or ice cream – basically treats without wheat in them.
Anyhow, if the doctors don’t have anything to offer, see if a change in diet helps at all.
Am delurking to say, if you think collecting your own is bad, try collecting it from your middle school child. I still can’t look her in the eye.
I had to collect a stool sample once, and while I don’t remember it being quite as bad as you describe, it DEFINITELY wasn’t fun. I was in graduate school and had two housemates who I was terrified would find out what I was doing. It was horrifying!
Even worse, my ex-boyfriend, who is still a friend, told me about an incident where he had to collect and bring in a stool sample when he was living in Hawai’i. He didn’t have a car and had to take public transportation everywhere. He had no idea how big of a sample he needed, so he filled the whole container up – only to have it expand on the hot bus and force the top of the container off. I guess that was a smelly, embarrassing mess.
I am crying from laughter. My dog is staring at me. Thank you.
This is so funny–I’m glad that you lifted the veil, at least in part! My girlfriend has been struggling for years with some sort of crazy, psycho, awful gastro problems that is being attributed to Chrone’s Disease, so hearing her tales has definitely ensured that the details have “lost their power to horrify.” I feel for you and hope you’ll find some answers soon. Life’s too short to spend the better part of your day wiping your own rear.
LOL. As a nurse, I am VERY experienced with collecting poo. Just not my own. That would probably be a little traumatic.
Alexa,
Please consider having the colonoscopy! I was diagnosed with ulcerative colitis via scope about a year ago. I am on medication now and in remission. If it is something like mild ulcerative colitis it is much easier to treat when it is mild rather than when it becomes more severe. I hope you feel better soon. And also, I love your blog!
Sue
What do you eat? What do you drink? Do you exercise?
Oh, you are wonderfully funny (though I am so sorry you don’t feel well) but you also have the funniest commenters. Joaanna and La Flaca (sainthood! oh dear) in particular. Oh. I do like this place.
My husband has Crohn’s disease and I have often been his poo courier. I just assumed it went under “in sickness and in health, with loose stool and with firm.”
What? You didn’t say that?
Oddly enough, Alexa, I am intolerant to corn. The symptoms are very much like celiac, but occur after corn, corn syrup, high fructose corn syrup, corn starch, etc. A naturopath “diagnosed” me. The allergist, however, thinks I’m nuts.
But as long as I avoid anything with maltodextrin, sorbitol, asorbic acid, et. al. and stay away from Mexican restaurants, I feel fine. And truthfully, I feel a lot healthier without the high fructose corn syrup in my diet.
Just something to ponder. You could try an elimination diet to see if it has any affect on you.
As for the colonoscopy – the prep sucks, but the procedure itself is not the end of the world. You won’t even remember it. And the side effect is that you’ll be super skinny for a week, but you can eat like a horse. Perfect if you need to fit into tight jeans or attend a special-dress occasion. :)
It posts like this one, and your and other bloggers’ unflappable humor, that kept me from frantic phone calls when my son recently drank his own urine. Instead I just imagined the great post it would make as I shared my horror (and amusement) with others.
If you are able to come up for air in between writing, Crock Potting and stool sample collecting, come on over to see the award I just gave you. :)
Also, great crockpot recipes abound at http://crockpot365.blogspot.com
Hilarious. I *actually* laughed out loud when I read the “half empty” part.
Also, a friend of mine did this allergen detox-y diet thing where she scaled back all eating to only veggies and something else, I don’t know the specifics, and then added back foods one at a time to figure out what the culprit was and eventually figured out she had a soy allergy and lactose intolerance. I don’t know the name of it, but perhaps that could be a way to self-diagnose that doesn’t have you up too late at night visiting Dr. Google?
Oh I’m sorry you’re going through this. I’ve done it a couple of times, once even in a foreign country. The poop collection, plus one sigmoidoscopy (sp?), plus many a blood test, acupuncture, naturopathy, some half-assed food elimination (oh goodness; I don’t want to even try to find all the puns in there), and the diagnosis was IBS. I haven’t done the 3 month no-gluten test, but I suppose I should.
Geez, I’m glad collecting cat and dog poo for the vet is so much easier. Hope everything turns out to be fine!
I’m late to the party, and delurking to boot (gotta love the way a good stool sample story brings out the lurkers).
I went through this same thing last summer, and reading your post made me gag with the memory of disposing of my “hat” in our neighbor’s trash can. Seriously, the thought of going in the hat cured me of any pooping at all for about 2 days, a miracle in and of itself. And the thought of it even now makes me gag a little bit.
I just wanted to let you know that even though my GP and my gastroenterologist were absolutely sure I had celiac disease, I have tested negative for it twice on the blood test and had absolutely no relief of my symptoms after a 3 month hell of restricting gluten. My gastroenterologist now thinks I just have my own funky version of IBS, and her parting words of wisdom to me were: “Some people just don’t ever make a solid stool and that is ok.” I have gotten some minor relief from a low dose of Elavil, which is sometimes prescribed for IBS, but I did not think that level of relief was worth the side effects. My GP (who is very traditional and not at all an alternative medicine person) finally recommended a big dose of peppermint oil twice a day, and that has been helpful, if not a panacea.
The biggest thing that has helped me is that a doctor friend of mine who knew how much sugarless gum I chewed during the day told me that could be wreaking havoc on my stomach, and he was right: After I stopped chewing gum, my stomach issues were not cured, but I haven’t had a single instance of, ahem, not making it to the bathroom. (knock on wood, knock on wood, knock on wood)
Sorry for the forever long comment – just wanted to share my experience with you.
Hi, great story about the stool collecting. I have done the same myself in the past, only without the plastic tray helper thing so it was even more of a nightmare!
I don’t think it’s too extreme to go down the endoscopy/gastroscopy route, I had these done myself a few years ago when I had some major problems. Thankfully nothing sinister was revealed and they diagnosed me with “gluten intolerance”, without actually being coeliac. If you have the exams done, opt for a general anaesthetic, I did and am glad!