Mirror.
Two years ago today, I left work around noon. I didn’t know it, but it was my last day. I drove to my doctor’s office and chatted with the nurse while she slid an ultrasound transducer along the jutting camel’s hump of my belly. Then there was the doctor:
You can see here, he said, pointing, the fetus is demised.
Two years ago today, I called Scott and told him to come, because one of the babies had died. After I hung up I realized I hadn’t said which.
It has been two years since we lost Ames—or, more accurately, since we discovered that he had slipped away from us a few days before, without our notice. Maybe while I was eating or watching television or typing, like I am now, on this two-years-later morning. A few minutes ago I opened my feed reader and, through Mel’s Lost and Found, discovered that a woman named Eve went to an appointment, like mine, and lost a little boy, like Ames. His name was William.
Her daughter, Abigail, is still swimming inside of her, and oh do I wish I did not know exactly how that feels. Like standing at the edge of a cliff eroded by hard rains. Blindfolded. In a windstorm. After a vertigo-inducing spin.
I don’t know Eve. But now I keep composing and deleting letters to her in my head.
I can’t promise that her daughter will be safe. She is two weeks further along than I was, past the hallowed mark of viability, but anyone who has been in a NICU knows this is no guarantee.
I can’t reassure her that despite what she wrote in her entry, she WILL be able to hold her son, and have his footprints taken. Those are Ames’ prints at the top of this post, but who knows what euphemistic changes would have occurred if Simone stayed put until the end?
I am uselessly lacking in clairvoyance.
I can tell her that it happened to me. That it was a terrible time, but I survived it, as people do, whether they want to or not. I can tell her that whatever she feels now is just what she should be feeling, and the same goes for tomorrow, and two years from then. It’s okay for her to be grief-stricken over William during her daughter’s triumphs, and it is also okay for her not to be. It’s okay for her to alternate between the two. Celebration isn’t a betrayal of grief, and grief isn’t a betrayal of joy.
Birth and death don’t belong all bundled up together in such a way, and however you sort it all out is your own business, to be done in your own way, in your own time.
There is no script for this, which will make people uncomfortable, but it is not your job to make people comfortable.
The ones who matter will be there in whatever way you need them to be, to laugh or cry or hope or despair, or to do all at once. And I am here too, if you need me. I am a font of anecdotal evidence and obsessively researched statistical information.
Kind people of the Internet, you held me up during my Dark Time. Please, if you can, stop by and link some virtual arms around Eve, today. It means more than you think.






49 Comments
Aw, Lex. Thinking of you.
oh, dear.
I wish mothers and fathers were never in this kind of pain, or the pain and fear of illness and uncertainly, but then, I guess it wouldn’t be parenthood if you didn’t get some bitter with the sweet. I’d like to give you and Eve a hug and a bowl of homemade mac and cheese.
A lovely and sensitively written reflection of pain and loss. Thinking of you and Eve, knowing that a secret part of your hearts will forever be standing on the edge of that cliff.
I’ve not known the situation that you (or her) were (are) in, but I did have my son pass away at 25 weeks and so I know that loss and it hurts and makes no sense.
I hurt for you and her and anyone who has had this loss tear at their souls.
Yes. All of it.
I lost one, then the other. Two years for me, too.
It is bittersweet to know that others understand. *Really* understand.
May Abigail live long and healthy.
I was directed to your blog from a friend who has watched your blog for a long time…she battled infertility, she found out she was having twins, she gave birth at 25 weeks…and she’s a lucky one…both of her girls live with her.
I am more like you, except ours was not a journey of infertility. God blessed us with twins to love but unfortunately they won’t grow up together. At 23 weeks our mono-di twins developed acute TTTS and we had immediate surgery. Our recipient baby passed away from heart failure the next day. We, like you, found out sort of by accident and in not so gentle manner. “This baby has no heartbeat, it’s gone.” And then the doc (during a fetal ECG) looked up and said “I’m sorry, your baby has passed away”.
I am so sorry that you have to make this journey, that any of us do.
Please feel free to check out my blog http://journeytohopeandhealing.blogspot.com/
or email me if you wish…it’s good to find others who ‘get it’.
Thank you for sharing that precious picture of Ames feet with us. Thinking of you…
Alexa,
I remember so well how utterly horrified I was when this happened. I am sorry it had to happen again to some other poor hopeful mom. Thanks for letting me know. Thinking of you…
You write so beautifully, Alexa, even about impossible topics such as this one. Thank you so much for sharing your thoughts and feelings. I love reading your blog and can’t wait to read your book.
I thought of you when I read that last night. Her blog–like yours–had always made me laugh and it was the last thing I expected to see–like yours–when I clicked through on the Reader.
Thinking of Ames with you today.
Both families are in my thoughts.
Hugs to everyone who has experienced the loss of a child today and everyday.
Thank you for the link to Eve. I stopped by her blog and left a comment. And I’m thinking of you guys, too.
Alexa, I started reading your blog about two years ago, after Ames had died and after Simone was born. I have loved reading every moment of your journey, your entire family’s journey. I still find your writings to be inspirational, even the difficult ones when you admit that you are at a loss for an explanation or resolve.
All that to say, thank you for sharing your life as it has been happening and giving me a perspective I would have otherwise missed.
You put what must be the most tragicomic, bittersweet, fucked up circumstances into such clear, beautiful, understood words. Remembering Ames today, as always, and I also understand the need to put yourself forth as someone who has walked on the path and survived. Thank you.
My horrible ultrasound was at twenty weeks, when I was told I had dilated 3 cm. My twins were born and died a week later. I know my experiences were a little different, but I think your words and advice are spot on.
Thinking of both of your families. No family should have to be without their Ames or William or Sam & Emilie.
Your own experience must flash before you when you read an account like that.
Thinking of you today too.
I think whatever letter you send (and you should send one) will help her know she’s not really alone, even if it feels that way. A hand on the edge of the cliff, holding her steady. Send it.
Thinking of you today.
It’s funny (in the incredibly sad and weird sense of “funny”), but as I go through this twin pregnancy, one of my greatest fears is showing up to an ultrasound and discovering the death of one or both of these sweet babies. The “funny” part, really, though, is that I think of such a tragedy happening, and I think, ‘Alexa survived it.’
Alexa, it may have been unspeakably horrible, and it may be so weird to say so coming from a virtual stranger, but it helps me to know that you *can* come out the other side of an incredibly devastating loss and still be mostly human, still capable of getting up in the morning, and sort of functioning. It helps to know that even if the very worst happens, there is life afterward.
So thank you. And thank you for linking to Eve’s story, as I know that were the same to happen to me, it would mean the world to know that my story was heard.
I saw the information about Eve on LFCA and thought immediately of you, Scott, Simone, and Ames. I didn’t go over to Eve’s blog because I didn’t think I had anything to say, but then again, maybe I do. I’ll go right now.
Beautiful post. Went straight away to Eve’s blog. Love those footprints.
Thank you, thank you so very much for your encouraging and honest words. I read them aloud through tears to my husband. The kind words of support from your readers means more than anyone can know.
Eve
I found your blog before you got pregnant with the twins. I loved your writing style and it made for must read for me (especially as I had also suffered from infertility). I hoped for you before you found out you were pregnant and read all the updates in between. I will never forget reading about your loss of Ames. While there have been many moments since then that are so moving, that was the first blog post I ever read that was akin to the scratching record needle. It all just stopped.
I am thinking of Ames today, and of you and whats-her-face (don’t want her getting a big head) oh all right, Simone is the cutest toddler on the block.
Love to you and your family.
*hugs* to you and to Eve. I cannot even begin to imagine what this would be like.
Your story is so eerily similar to our story, but ours was three years ago this week. It is all too common a story. Remembering Ames. Remembering our Charlotte. Praying for Abigail.
Thinking of you, Alexa. And remembering your precious Ames.
I’ll step away from the subject matter for a moment (though it is painfully meaningful to me) to say this: you are an exceptional writer. I haven’t bought any books from bloggers I read but I will seek out yours for myself and for others.
Mirror is exactly right. It’s a little more than three years for me. I remember finding out that our little boy was gone and hoping with all my heart that our little girl would make it. And she almost did.
Thinking of you today.
God bless you and your little baby boy.
I’m so glad i checked in on you today. This is wonderful.
(completely unrelated: I saw your twitter comment– that damn ceiling fan haunts me too!!!!)
Oh, words fail.
Thinking of you and sending cyber hugs your way. going to eve’s blog…
those are some beautiful footprints.
and yes, to all you said.
and i guess it’s been about two years, then, since a link on someone else’s blog directed me to you. i will go to Eve now, to be there too.
I was so heartbroken to read her post today. I love her blog and just can’t believe this is happening to her. Really what can you say to anyone this happens to? It is horrible, terrible and everything feels like not enough. No comfort or solace to be had anywhere.
Alexa,
I recall my shock,sadness and horror when you lost Ames. I shall click on over.
g
Cyber hugs and kisses to you.
Beautiful post. I have been following Eve’s blog for sometime and am heartbrooken along with many others. Nothing close to what I can only imagine you and her went (are going) through. Thank you for your kind words for Eve!!
Thinking of you, and Ames, and Eve and William.
Thank you so much for this post. It is beautifully written, and I can feel it in my heart.
I’m on my way to Eve’s. Thanks.
This post was so perfectly perfect. That might seem like an odd sentiment – what part of death is perfect? – but you said so perfectly what a lot of people are so lucky to never know. It’s NOT wrong to be sad that one of your children died when you see another one laughing. It’s NOT wrong to be so busy you didn’t think about him (or her) today. It’s NOT wrong to grieve two years later. I grieve sometimes. And it’s been six years and 4 weeks since we knew our baby wasn’t coming home with us.
You have beautiful words. Thank you for sharing them.
yes, as the others have said, you are an elegant writer. i seek writers like you in my daily blog reading and believe me, i’ve found but a few. in fact, there are perhaps three or four whose blogs i will call Real Writing. for Eve, and perhaps for you and others like yourselves, do you know Glow in the Woods by the lovely Sweet Salty Kate Inglis? If not, do Google. You won’t regret it. It’s relevant to your post.
“Celebration isn’t a betrayal of grief, and grief isn’t a betrayal of joy.”
Oh, but that is wonderful and so well written.
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It happened differently for me. At my ultrasound appointment – routine, March 3rd, 2009 – the screen showed my two healthy baby boys kicking each other vigorously. Then the tech sent me, feeling finally a little relieved 22 weeks and 6 days into my IVF-assisted pregnancy, to pee and return for a quick cervix check. “When was your last ultrasound?” she asked, in a tone I couldn’t quite decipher. Three weeks ago. Then, “and did the doctor say anything about your cervix?” I was wheeled across the street and tilted back into trendelenburg. I was 5 cm dilated, with bulging membranes. They performed a rescue cerclage even as I started contracting. Against all reason, the stitch took. But I kept contracting. And started bleeding. I spent two weeks in hospital before baby A’s membrane ruptured, and nearly another three before he died. His name was Henry. The nurses had performed a non-stress test that morning, and he was fine. Four hours later, they couldn’t find his heartbeat, and my back had started to ache. I was 27 weeks and 3 days pregnant, a few days away from celebrating the 28-week mark. That evening, septic, I delivered my boys by emergency c-section. We held Henry in the recovery room while we waited four long hours to receive the news that his brother Peter was stable and in the NICU. There he remained for 75 long days. He is almost seven months corrected now, and doing well so far. Sometimes, now, when I’m feeling particularly lucky that Peter is so beautiful and happy, my heart breaks to think that there should be another baby too, also beautiful, also happy.
I’ve been reading your blog for some time now, and it’s given me a great deal of comfort. Thank you.
I can’t imagine what that must be like. All I know is that it must be so very painful. Going over to hug Eve right now.